Translating Chronic Illness Research into Practice

Debbie Kralik is General Manager, Strategy and Research at the Royal District Nursing Service in South Australia and Associate Professor, University of South Australia and Adelaide University. Barbara Paterson is Professor of Nursing and Tier 1 Canada Research Chair in the Faculty of Nursing, University of New Brunswick, Canada. Vivien Coates is Professor of Nursing Research, School of Nursing, University of Ulster & Assistant Director of Nursing, Western Health & Social Care Trust. (Joint appointment).

• List of Contributors Preface1. Globalisation of Chronic Illness ResearchSally WellardIntroductionWhat is in a name?Global crisis in chronic illnessImpact of chronic illness in developing nationsTrends in chronic illness research in developed nationsPolicy drivers: taking actionGlobal initiatives for future chronic illness managementConclusionReferences2. Transitional Processes and Chronic IllnessDebbie Kralik and Antonia van LoonIntroductionThe searchDefining transitionAn emerging understanding of transitionDescribing transitionTransition and identityTransition and transformative learningTransitional processesA transition framework for practiceConclusionReferences3. Translating Chronic Illness Research Across the LifespanMarit KirkevoldIntroductionHuman development across the lifespanKey assumptions of the lifespan developmental perspectiveHuman development in old ageApplications of lifespan developmental perspectives in chronic illness researchSupporting age-appropriate development without jeopardising the safe management of serious chronic disease: the case of cystic fibrosisChronic illness in old age: providing developmentally appropriate integrity-promoting care to persons suffering from dementiaConclusions and implicationsReferences4. Assisting People with Chronic Illness toManage Co-Morbid ConditionsAllison WilliamsIntroductionConceptualising co-morbiditySocial determinants of co-morbiditiesThe medical paradigmHealth-care systemsCo-morbidity managementModels of chronic illness managementConclusionReferences5. Conceptualisation of Self-ManagementMalcolm Battersby, Sharon Lawn and Rene PolsIntroductionBackground to the use of the term self-managementHistorical developments in self-managementAssociated concepts or models that overlap with or inform self-managementAlternative definitions of self-managementConclusions: the future for chronic condition self-managementReferences6. The Relevance of Self-Management Programmes for People with Chronic Disease at Risk for Disease-Related ComplicationsBarbara Paterson and Max HopwoodIntroductionBackgroundTheoretical frameworkOverview of relevant researchSampleParticipationAttritionDiscussionConclusionReferences7. The Potential of Technology for Providing Social Support to People and FamiliesDavid B. NicholasIntroductionBackgroundThe Internet as a health resourceImpact of advanced technology in fostering therapeutic gain: overview of relevant researchSocial support delivery: considerations in selecting advanced technology methodsInto the virtual futureReferences8. Chronic Illness Research: TranslatingWhat We Know into What We DoRenee F. Lyons, Lynn McIntyre, Grace Warner, Celeste Alvaro, Alastair Buchan, Ian Reckless and Alison KitsonIntroductionThe task aheadThe dose–response problemThe promise of researchKnowledge translation: emerging from naïvetéEmbedding KT within research agencies and grantsWeb-based KT innovationsWhat chronic illness research gets taken up?Policy containers and the future of chronic illnessThe future of chronic illness: systems change using stroke examplesConclusionReferences9. Future DirectionsDebbie KralikGlobal perspectiveFacilitating the will of the peopleThe evidence baseTechnology and health promotionTransitionSelf-management and self-careHealth in the communityReferencesIndex