The Oxford Textbook of Palliative Social Work

Terry Altilio, MSW, LCSW, APHSW-C is a social worker with 34 years of direct practice experience in palliative care most recently in the Division of Palliative Care at Mt Sinai Beth Israel Medical Center. She teaches in graduate and post-masters social work programs, lectures nationally and internationally and authors publications which center the role of social work as a core discipline in the work of palliative care. Shirley Otis-Green, MSW, MA, ACSW, LCSW, OSW-CE, FNAP, FAOSW, is a palliative social work consultant, educator and researcher whose career focuses on transforming the delivery of care to more equitably address the symptoms and stress of serious illness. As Principal Investigator on studies with over $3.5 million in external funding, her work has been disseminated through more than 100 publications and 500 professional presentations. Shirley is a National Association of Social Workers Pioneer. John G. Cagle, MSW, PhD is an Associate Professor at the University ofMaryland School of Social Work. His research has been supported by both public and private entities, including the University of Maryland School of Social Work Financial Social Work Initiative, the Hospice Foundation of America, the National Palliative Care Research Center, the John A. Hartford Foundation, the National Institute on Aging, the Agency for Healthcare Research and Quality, the National Hospice and Palliative Care Organization, and the Foundation for Care at the End of Life.

• Contents Forewords Susan Blacker Betty R. Ferrell Kathleen M. Foley George Handzo Matthew J. Loscalzo Diane E. Meier Russell K. Portenoy Preface Acknowledgments Contributors I. Converging Contexts of Care 1. Centering the Lens of Social Justice Eucharia Borden, Meagan Lyon Leimena, and Bridget Sumser 2. Health Equity in Palliative Care Tessa Jones, Frances Nedjat-Haiem, and Karen Bullock 3. The Importance and Impact of Culture in Palliative Care Todd D. Becker and John G. Cagle 4. Spirituality and Social Work Practice in Palliative Care Dona J. Reese, Holly Nelson-Becker, and Ann M. Callahan 5. The Power of Language: Inviting Attention and Intention to Word Choice Terry Altilio and Anne Kelemen II. Historical Context-Bringing History Forward 6. Guess Who's Coming to Dinner? The Evolving Identity of Palliative Social Workers Philip C. Higgins 7. Social Work and Palliative Care-The Early History Dame Cicely Saunders 8. Palliative Social Work: An Historical Perspective Bernice Catherine Harper III. Collaborative Contexts 9. A Commitment to Collaborate: Challenges and Opportunities Jill Farabelli and Vickie Leff 10. Walking across to Collaboration Terry Altilio IV. Person-Centered, Family-Focused Practice 11. Interventions to Support Children and Adolescents during Parental Illness Katie Aliberti 12. Social Work in Pediatric Palliative Care Barbara L. Jones, Stacy S. Remke, Rachel Carnahan-Metzger, and Farya Phillips 13. Adolescents and Young Adults Living with Serious Illness Christabel K. Cheung and Lori Wiener 14. LGBTQ Patient Palliative Care: A Queery into Quality of Life Charlie Blotner and Danae Dotolo 15. Beyond Vulnerability: Enhancing Agency and Adapting Systems Sarah Gehlert and Teresa Moro 16. A House Is Not a Home: Palliative Care with People Experiencing Homelessness Adam Schoenfarber and Pamela Adams 17. Dying in a Foreign Land Iraida V. Carrion 18. Palliative Care for Veterans Louisa Daratsos and Alba Lopez 19. Palliative Social Work with Older Adults and Their Families Deborah Waldrop, Mercedes Bern-Klug, John G. Cagle, and Daniel S. Gardner V. Person-Centered, Family-Focused Practice across Diagnoses 20. Person-Centered Practice in an Expanding Palliative Care Landscape Chris Onderdonk 21. Palliative Social Work and Heart Failure Arden O'Donnell and Tracy Ng 22. The Collaboration of Palliative Care and Oncology Social Work Annabelle Bitter and Malory Lee 23. Dementia: Challenges and Opportunities across the Trajectory of Care Abigail Nathanson and Abigail L. Latimer 24. Palliative Care in Chronic Kidney Disease Elizabeth B. Anderson and Teri Browne 25. Amyotrophic Lateral Sclerosis and Neurologic Disease: The Role for Palliative Social Work Judith Wood Mintz 26. Palliative Care during the COVID-19 Pandemic: Opportunities for Growth in the Face of Loss and Isolation Carina Oltmann and Sheri Mila Gerson 27. Clinical Trials and the Role of Social Work Karlynn BrintzenhofeSzoc VI. Person-Centered, Family-Focused Practice across Settings 28. Palliative Care Consultation Colleen M. Mulkerin, Katherine S. Lepak, and Sara Z. Morrison 29. Palliative Social Work in the Emergency Department Robin Rudy Lawson and Maya Genovesi 30. Palliative Social Work in the Intensive Care Unit Nina Laing 31. Surviving the Intensive Care Unit Nina Laing and Anna Lewis 32. Palliative Care in the Perinatal and Neonatal Setting Meagan Lyon Leimena and Rachel Rusch 33. Outpatient Palliative Care: Walking the Path Together Anne Front 34. Home-Based Palliative Care Kennan Moore, Christine Goldstein, and Jeanine Sanderoff 35. Social Work in Hospice Care John G. Cagle and Rachel E. Brandon 36. Pediatric Hospice and Palliative Care: The Invaluable Role of Social Work Stacy F. Orloff 37. Palliative and Hospice Care for Incarcerated Persons Katharine P. Supiano and Jamey Boudreaux 38. Palliative Care in Long-Term Care Facilities Mercedes Bern-Klug, Kara A. Carter, and Kelsey Simons 39. The Integration of Rehabilitative Therapies and Palliative Care Jennifer Schutt 40. Palliative Social Work in Rural Communities Karla T. Washington and Christine M. Lero 41. When Inner Cities Are Motivated by Compassion: The Role of Palliative Social Work Richard B. Francoeur and Kenneth R. Sergiacomi VII. Regional Voices from an International Perspective 42. International Palliative Social Work Sheri Mila Gerson and Pam Firth 43. Palliative Social Work: An African Perspective Jennifer Hunt and Valerie Maasdorp 44. It Takes Two to Tango: The Social Worker and the Family in Palliative Care Elena D'Urbano 45. Australian Palliative Social Work Patricia Collins, Julie Greathouse, Brendan Myhill, and Lauren Gough 46. Social Work and Palliative Care in Brazil Lena Lansttai Bevilaqua Menezes and Leticia Andrade 47. Palliative Social Work in Canada Susan Cadell and Harvey Bosma 48. Culture- Sensitive Palliative Social Work with Chinese Populations Ming Ming Cheng and Cecilia Lai Wan Chan 49. Palliative Care: An Indian Perspective Aarti Jagannathan, Srilatha Juvva, and Priya Treesa Thomas 50. Palliative Social Work in Israel Tali Samson 51. Culture, Social Determinants of Health, and Palliative Care in the Pacific Basin Lana Sue Ka'opua, Luana M. Y. Scanlan, and Yvonne Duhaylongsod Yim 52. Palliative Social Work in Romania: New Perspectives Petrukta Anania and Csaba László Dégi 53. Palliative Social Work in Singapore Cheng Wan Peh and Tzer Wee Ng 54. Palliative Social Work in Switzerland Marc-Antoine Berthod and Laetitia Probst-Barroso 55. Palliative Social Work in the United Kingdom Becky Chaddock, Sally Paul, and Anne Cullen VIII. Interventions: Foundations of Palliative Social Work Practice 56. Merging Research and Clinical Practice Tamara Cadet 57. Families and Family Conferencing Iris Cohen Fineberg 58. Family Caregivers in Palliative Care: Social Work Roles and Responsibilities Myra Glajchen and Christine Wilkins 59. Mental Health Risk in Palliative Care: The Social Work Role Katherine Walsh and Susan Hedlund 60. Connections and Context: Thinking Critically about Strengths, Resilience, and Growth Sheryl Lee Shermak and Susan Cadell 61. Advance Directives from a Social Work Perspective: Influence of Culture and Family Dynamics Ramona Bullock-Johnson and Karen Bullock 62. The Social Work Role in Pain and Symptom Management John G. Cagle and Terry Altilio 63. Sexual Expression and Physical Intimacy for Those with Serious Illness Les Paul Gallo-Silver and Michael O. Weiner 64. Holding On and Letting Go: The Red Thread of Adult Grief and Bereavement Susan Gerbino and Mary Raymer 65. The Integration of Technology: Benefits and Challenges Katherine Campbell IX. Interventions: Supporting Effective Palliative Social Work Practice 66. Interventions in Palliative Social Work Practice: The Intimate Connection with Assessment Anne Kelemen and Stacy S. Remke 67. Acceptance and Commitment Therapy: Enhancing Psychological Flexibility in Serious Illness Kayla Moore 68. Anticipatory Guidance Stephanie Gasca and Rachel Schindel 69. Bibliotherapy Nancy F. Cincotta and Tracy Moore 70. Cognitive- Behavioral Therapy in the Palliative Care Setting Carina Oltmann 71. Care Coordination: Providing Quality Care, Reducing Costs and Unnecessary Utilization Rebecca Cammy and Lauren LaTourette 72. Crisis Intervention Esther Ammon 73. De-Escalating Highly Emotional or Potentially Violent Situations Kathleen Hurley 74. The Doctor Within: Integrative Health, Social Work, and Palliative Care Lucia McBee 75. Eye Movement Desensitization and Reprocessing for Pain Management Yvette Colón 76. Building the Complete Father Intervention Michael O. Weiner and Les Paul Gallo-Silver 77. Bereavement in the Beginning Phase of Life: Grief in Children and Their Families Nancy F. Cincotta 78. Practice Considerations: Group Work Nancy F. Cincotta 79. Meaning- Centered Therapies: Reconnecting with Life Jordan Nichols 80. Medical Crisis Counseling Clara Van Gerven 81. Motivational Interviewing: A Person-Centered Model of Communication Jordan Nichols 82. The Power of Narratives and Storytelling Cara L. Wallace 83. Using Psychoeducation to Empower Patients, Their Families, and Care Partners Bessy Santiago 84. Single- Session and Solution- Focused Brief Therapy Kasey Sinha 85. Structured Problem-Solving Interventions for Patients with Serious Illness and Their Care Partners Rebecca Cammy and Lauren LaTourette 86. Supportive Counseling William Michael Cooper 87. Trauma Therapies for Palliative Care Practice Chelsea Brown 88. Using Schema Therapy to Meet Needs in Palliative Care Lissa Parsonnet X. Ethical Considerations 89. Ethical Considerations in Palliative Care: An Overview Wendy B. Walters 90. Ethics in Medical Decision-Making: Exploring the Limits of Autonomy Tracy Borgmeyer 91. Hospice and Palliative Social Work's Ethical Challenge: Aid in Dying in the United States Tracy Schroeper, Jaime Goldberg, and Stephanie Wladkowski 92. Pediatric Palliative Care Ethics and Decision-Making Nicholas Purol and Danielle Jonas 93. Technology and Ethics Christina Bach XI. Professional Issues 94. Advancing the Social Work Profession within Palliative Care John G. Cagle 95. Navigating in Swampy Lowlands: A Relational Approach to Practice-Based Learning in Palliative Care David M. Browning and Susan Gerbino 96. The Influence of Policy on End-of-Life and Palliative Care Nancy Kusmaul 97. The Evolution of Advanced Certification for Palliative and Hospice Social Workers Barbara Anderson Head and Alyssa Ashlyn Middleton 98. Supervision and Mentoring for Social Workers in Palliative and End-of-Life Care Cathy Berkman, Carolyn Genereux, and Anne Front 99. Professional Self-Care, Resilience, and Well-Being Colleen M. Mulkerin 100. Self-Care Practice Wisdom: A Letter to My Younger Self Kerry Cox Irish 101. Leadership in Palliative Social Work Cathy Berkman, Grace Christ, and Allison Shukraft 102. Professionalism: Making Connections, Enhancing Knowledge, and Building Leadership Ellen L. Csikai, Barbara Jones, and Kendra D. Koch 103. Building a Lasting Legacy: Reflections on Transformative Professionalism Shirley Otis-Green Epilogues. Terry Altilio. Rachel E. Brandon. John G. Cagle. Shirley Otis-Green. Index

The Oxford Textbook of Palliative Social Work, 2nd Edition was edited by three pillars of palliative social work. Terry Altilio, Shirley Otis-Green, and John Cagle shared decades of distinguished experience in palliative social work practice, education, and research. With this book, the editors did not just intend to impart evidence-based professional knowledge. More importantly, they reiterated how social inequities were faced in the past and how "both seasoned practitioners and fledgling learners" should persist in addressing them.