Profound Intellectual and Multiple Disabilities

ABOUT THE EDITORS: JILLIAN PAWLYN is Lecturer/Practitioner at Ridgeway Partnership NHS Trust and Oxford Brookes University, Oxford. STEVEN CARNABY is Consultant Lead Clinical Psychologist at Westminster Learning Disability Partnership, London.

• Contributors viiForeword ixAcknowledgements xiiiSection 1 Assessing Complex NeedsChapter 1 Introduction 03Jillian Pawlyn and Steven CarnabyChapter 2 Quality of Life: People with Profound Intellectual and Multiple Disabilities 15Katja Petry and Bea MaesChapter 3 Supporting a Person with Profound Intellectual and Multiple Disabilities to Maintain Their Health: A Parent Carer and Support Team Experience 37Jan Roast, Katie Hickson and Sarah KingChapter 4 Making Sense of Communication 46Karen BunningChapter 5 Promoting the Emotional Well-being of People with Profound and Multiple Intellectual Disabilities: A Holistic Approach through Intensive Interaction 62Melanie NindChapter 6 Achieving and Maintaining Health 78Jillian PawlynChapter 7 Clinical Assessment of People with Profound Intellectual and Multiple Disabilities 98Steven CarnabySection 2 Meeting Complex NeedsChapter 8 Mental Health Problems and People with Profound Intellectual and Multiple Disabilities 113Steven CarnabyChapter 9 Epilepsy: Implications for People with Profound Intellectual and Multiple Disabilities 134Mary Codling and Nicky MacDonaldChapter 10 ‘Sight Is Might’: Vision and Vision Impairment in People with Profound Intellectual and Multiple Disabilities 147Gill LevyChapter 11 Hearing and Aural Health 168Laura WaiteChapter 12 Respiratory Health of People with Profound Intellectual and Multiple Disabilities 186Colin WallisChapter 13 Dental Care and Oral Health 202Pauline Watt-SmithChapter 14 Dysphagia and People with Profound Intellectual and Multiple Disabilities 236Hannah CrawfordChapter 15 Nutrition, Hydration and Weight 259Siân Burton, Susan Cox and Sue M. SandhamChapter 16 Continence 292Jillian Pawlyn and Shirley BuddChapter 17 Mobility, Posture and Comfort 328Sarah Hill and Liz GoldsmithChapter 18 Profound Intellectual and Multiple Disabilities: Meeting Complex Needs through Complex Means 348Steven Carnaby and Jillian PawlynIndex 355

"The book is essential reading for learning disability nurses at any level.... A book that is crammed with both practical information and stimulating theory." (Learning Disability Practice, April 2009) "An accessible text examining best practice for assessing and meeting the needs of people with profound and multiple learning disabilities." (Viewpoint, November 2008)