Perspectives on Cancer Care

Josephine (Tonks) N Fawcett is Senior Lecturer and Anne McQueen is an Honorary Lecturer in the School of Health in Social Science at the University of Edinburgh.

• Contributors ixForeword by Professor Roger Watson xiAcknowledgements xiiiIntroduction 1Tonks N. Fawcett and Anne McQueen1 Cancer: a journey of discovery 8Tonks N. FawcettCancer 8Cancer as a journey 9The treatment journey 11Life after treatment 13The cancer care journey: then and now 15Cancer journeys: stories and narratives 18Reflections on the journeys 192 Integrating cancer genetics into healthcare 24Roseanne CetnarskyjThe relevance of genetics to the nurse's practice 25Identifying individuals with or at risk of genetic conditions 28Gathering multi-generational family history information 29Using family history information to draw a pedigree 30Recognising a mode of inheritance in a family 33Assessing genetic risk 34Referring individuals to specialist sources 37Genetic laboratory testing 39Communicating with individuals, families and healthcare staff 41Rare cancer syndromes 41Conclusion 423 'Being with woman': the care of the childbearing woman with cancer 48Rosemary ManderSignificance of cancer in childbearing 49Interaction of the cancer with the pregnancy and childbirth 50Cancer, childbearing and conflicts of interest 50Implications for the midwife and other staff 52Support for the childbearing woman with cancer and her family 56Conclusion 594 Mucositis and the development of a new instrument for the measurement of oral mucositis in children 63Deborah Tomlinson and Lillian SungPathophysiology of oral mucositis 64Measuring oral mucositis in adults 65Measuring oral mucositis in children 68Development of children's international mucositis evaluation scale 71Conclusion 805 Facing the challenges of primary malignant brain tumours 87Shanne McNamaraIncidence 87Origins and classification 88Aetiology 88Clinical manifestations of primary malignant brain tumours 89Prognosis 90Impact of diagnosis on the patient and their family 92Diagnostic investigations 92Treatment 93Medical management 98Palliative care 102A multidisciplinary approach 103The future 1036 Cancer and the surgeon 109Ashley BrownBecoming a cancer surgeon 109Surgery as a treatment regime for cancer 110Principles of cancer surgery 110The surgeon and the patient newly diagnosed with cancer 112The multidisciplinary team 113Recovering from cancer surgery 115The surgeon and the clinical nurse specialist 116The joys and heartaches of a cancer surgeon 118Conclusion 1207 Cancer pain 122Papiya B. Russell and Anil TandonThe concept of total pain 123Assessment and management of emotional, psychological or spiritual pain 125Assessment and management of pain 127The use of adjuvant analgesics 143The specific challenge of neuropathic pain 145Other pain-relieving measures 146Relieving pain at the end of life 148Conclusion 1488 Cancer-related fatigue 159Antonia DeanDefinitions of cancer-related fatigue 160The experience of cancer-related fatigue 160Assessing and measuring cancer-related fatigue 161Causes and mediators of cancer-related fatigue 162Management of cancer-related fatigue 165Discussion 171Conclusion 1749 The clinical research nurse in cancer clinical trials 179Patricia B. CampbellPreparation of research nurses 181Phases of clinical trials in cancer care 183The nurse–patient relationship in cancer clinical trials 187Conclusion 19110 Emotional work of caring in cancer nursing 196Anne McQueenCaring 196Emotional work 199Emotional intelligence 202Caring in cancer nursing 204Conclusion 20811 The management of rectal cancer and the consequences of treatment 212Gillian Knowles and Rachel HaighIncidence, risk factors and aetiology 212Presenting features, diagnosis and staging 215Management and treatment 217Self-care and supportive interventions 222Conclusion 22512 Sustaining hope in people with cancer: developments in palliative and end-of-life care 229Margaret Colquhoun and Vicky HillThe nature of hope 230Models and frameworks 231The Gold Standards Framework 233Person-centred care 236Liverpool Care Pathway for the Dying Patient 240Models, frameworks and hope 244Conclusion 245Conclusion 250Tonks N. Fawcett and Anne McQueenIndex 251Colour plate section follows page 50

"This is a well-written book with practical information backed up by evidence on contemporary issues relating to cancer nursing. It is a resource that clinical nurses will identify with and appreciated." (Nursing Standard, 1 February 2012) "Perspectives on Cancer Care has been written to support undergraduate and postgraduate nurses. The chapter on the management of cancer pain will be particularly useful for all nurses caring for patients in hospitals and receiving care in the community." (Nursing Times.net, 1 December 2011)"This book is likely to find a place in libraries and individual chapters may be useful to support course work . . . The use of case studies is a welcome illustration". (Cancer Nursing Practice, 1 June 2011)