Palliative Care for Infants, Children, and Adolescents

A Practical Handbook

Häftad, Engelska, 2011

AvBrian S. Carter,Marcia Levetown,Sarah E. Friebert,Children's Mercy Hospital) Carter, Brian S., MD FAAP (Professor of Pediatrics, University of Missouri-Kansas City School of Medicine,The Methodist Hospital) Levetown, Marcia, MD FAAP FAAHPM (Program Director for Palliative Care,Akron Children's Hospital) Friebert, Sarah E. (Director, Pediatric Palliative Care,Brian S Carter,Sarah E Friebert

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There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips.With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.

Produktinformation

Utgivningsdatum2011-12-10
Mått152 x 229 x 36 mm
Vikt704 g
FormatHäftad
SpråkEngelska
Antal sidor560
Upplaga2
FörlagJohns Hopkins University Press
ISBN9781421401492

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Brian S. Carter, M.D., is a professor in the Department of Pediatrics, Division of Neonatology, at Vanderbilt University Medical Center. Marcia Levetown, M.D., is Principal, HealthCare Communication Associates in Houston, past chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine, and a Soros Faculty Scholar Alumna of the Project on Death in America. Sarah E. Friebert, M.D., is Director of Palliative Care at Akron Children's Hospital, associate professor of pediatrics at Northeast Ohio Universities Colleges of Medicine and Pharmacy, and chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine.

List of Contributors Preface Part I: Societal and Institutional IssuesChapter 1. Epidemiology and Health Services Research Chapter 2. Goals, Values, and Confl ict Resolution Chapter 3. Barriers to Integrating Palliative Care and Potential Solutions Chapter 4. Educational Initiatives Chapter 5. The Art of Advocacy Part II: The Cycle of CareChapter 6. Decision Making Chapter 7. Communication Skills and Relational Abilities Chapter 8. Psychosocial Needs of the Child and Family Chapter 9. Spiritual Dimensions Chapter 10. Holistic Management of Symptoms Chapter 11. Bereavement Chapter 12. The Other Side of Caring: Caregiver Suffering Part III: Special Care Environments and Patient PopulationsChapter 13. Palliative Care in the Neonatal-Perinatal Period Chapter 14. Palliative Care in the Pediatric Intensive Care Setting Chapter 15. Palliative Care in the Home, School, and Community Chapter 16. Palliative Care for the Child Who Has a Genetic ConditionChapter 17. Integrating Palliative Care with HIV Care and TreatmentChapter 18. Integrating Palliative Care with Pediatric Hematology/Oncology Index

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