Palliative Care for Infants, Children, and Adolescents

Brian S. Carter, M.D., is a professor in the Department of Pediatrics, Division of Neonatology, at Vanderbilt University Medical Center. Marcia Levetown, M.D., is Principal, HealthCare Communication Associates in Houston, past chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine, and a Soros Faculty Scholar Alumna of the Project on Death in America. Sarah E. Friebert, M.D., is Director of Palliative Care at Akron Children's Hospital, associate professor of pediatrics at Northeast Ohio Universities Colleges of Medicine and Pharmacy, and chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine.

• List of Contributors Preface Part I: Societal and Institutional IssuesChapter 1. Epidemiology and Health Services Research Chapter 2. Goals, Values, and Confl ict Resolution Chapter 3. Barriers to Integrating Palliative Care and Potential Solutions Chapter 4. Educational Initiatives Chapter 5. The Art of Advocacy Part II: The Cycle of CareChapter 6. Decision Making Chapter 7. Communication Skills and Relational Abilities Chapter 8. Psychosocial Needs of the Child and Family Chapter 9. Spiritual Dimensions Chapter 10. Holistic Management of Symptoms Chapter 11. Bereavement Chapter 12. The Other Side of Caring: Caregiver Suffering Part III: Special Care Environments and Patient PopulationsChapter 13. Palliative Care in the Neonatal-Perinatal Period Chapter 14. Palliative Care in the Pediatric Intensive Care Setting Chapter 15. Palliative Care in the Home, School, and Community Chapter 16. Palliative Care for the Child Who Has a Genetic ConditionChapter 17. Integrating Palliative Care with HIV Care and TreatmentChapter 18. Integrating Palliative Care with Pediatric Hematology/Oncology Index

"An inspiring and accessible look at what end-of-life care for children should be - it is a text that should grace the shelf of every clinician facing the death of young patients." (Journal of the American Academy of Child and Adolescent Psychiatry)"