Oxford Textbook of Palliative Nursing

Tara A. Albrecht, PhD, ACNP-BC, ACHPN, RN, is a nurse practitioner, nurse scientist and the Specialty Director of Palliative Care at Duke University School of Nursing. Her program of research is focused on ameliorating symptoms and distress with the goal of improving to patient-reported health outcomes in adults with cancer and specifically those with hematologic malignancies. Her research also explores how the diagnosis of a cancer impacts the family. She works with an interdisciplinary team of scientists and clinicians with the shared goal of advancing symptom science to improve outcomes for adults living with cancer and their families.Vanessa Battista, DNP, MBA, CPNP-PC, CHPPN, FPCN, FAAN, is a board-certified Pediatric Nurse Practitioner (PNP) and currently serves as Senior Nursing Director of Palliative Care at the Dana Farber Cancer Institute. She is responsible for clinical operations and practice of the inpatient and outpatient adult and pediatric palliative care nursing team.Dr. Battista also works with an interprofessional leadership team to ensure the delivery of high-quality palliative care throughout the Institute with a focus on nursing education.She lectures and teaches at the local, national, and international level, and is a member of the ELNEC pediatric faculty.Heather Coats, PhD, APRN-BC, FAAN, FPCN, is a palliative care nurse practitioner who many roles, including researcher, administrator, clinician, and educator. Currently, she is the Director of Research for Hospice and Palliative Nurses Association (HPNA) and an associate professor at the University of Colorado, College of Nursing, Anschutz Medical Campus, in Aurora, CO. With a well-founded based of palliative, oncology, and hospice care spanning over 28 years, her program of research investigates the use of person-centered narrative interventions to improve communication between patients, their identified care partners, and the clinicians who care for them. For this program of research, she has been funded by NIH and the Cambia Health Foundation.She was the 2021 HPNA Vanguard recipient, is a Fellow in Palliative Care Nursing, and a Fellow of the American Academy of Nursing, and represents the Hospice and Palliative Nurses Association on the NASEM Roundtable on Quality Care for People with Serious Illness.Abraham A. Brody, PhD, RN, FAAN, FPCN, is a palliative and geriatric nurse practitioner who has worked across settings to improve the quality of care and quality of life for seriously ill individuals. His research and implementation work centers on the intersection of geriatrics, palliative care, quality, and equity. This includes the development of interventions tailored for diverse and underserved older adults with serious illness and their caregivers that can be implemented in real-world conditions are tested for effectiveness in large multi-site clinical trials. His work leverages emerging technologies, including precision health and machine learning, to support the interdisciplinary healthcare workforce.His work has led to the development of the Aliviado Health Program, which seeks to help care delivery organizations provide evidence-based geriatric palliative care to persons living with dementia and their caregivers, which has been disseminated throughout dozens of hospices, home care agencies, nurse-led telephonic care programs, case management, and other settings, impacting care of over 50,000 individuals.

• Acknowledgments PrefaceBetty R. Ferrell & Judith Paice Part I: General Principles Chapter 1: Introduction to Palliative CareTara A. Albrecht, Heather Coats, & Vanessa Battista Chapter 2: Role of Nursing in Palliative CareMichelle Webb Chapter 3: Public Policy for Palliative CareMarian Grant Chapter 4: Principles of Patient and Family AssessmentShannon L. Storey Chapter 5: Palliative Nursing CommunicationConstance Dahlin & Janice Linton Chapter 6: Advance Care PlanningShigeko Izumi Chapter 7: Value Based CareRory B. Farrand & Aparna Gupta Chapter 8: Interdisciplinary Palliative Care Teams: Specialists in Delivering Palliative CareRebekah Malloy, Jessica Bullington, Catherine Rogers, & Adrienne Norquist Chapter 9: Enhancing Team EffectivenessKatrina Bezak & Kimberly Chow Chapter 10: FatigueEdith O> 'Neil-Page, Grace E. Dean, & Paula R. Anderson Part II: Symptom Assessment and Management in Adult and Older Adult Populations Chapter 11: Pain ManagementJudith A. Paice & Martin Galligan Chapter 12: Dyspnoea and CoughDorAnne Donesky, Susie McDevitt, & Rebecca Disler Chapter 13: Anorexia and CachexiaElizabeth E. Schack & Elizabeth Capano Chapter 14: Nausea and VomitingDavid Collett Chapter 15: Dysphagia, Hiccups, and Other Oral SymptomsRachel Klinedinst, Brenna McCarty, & Barton Bobb Chapter 16: Bowel Management: Constipation, Obstruction, Diarrhea, and AscitesSerena Snow & Cameron Jennings Chapter 17: Medically Administered Nutrition and HydrationJennifer A. Tschanz & Carmen N. Spalding Chapter 18: Urinary Tract Disorders in Palliative CareSusan D. Bruce Chapter 19: Lymphedema ManagementMei R. Fu, Charles P. Tilley, Rubén Martín Payo, & Catherine S. Finlayson Chapter 20: Palliative Wound, Ostomy, and Continence CareCharles P. Tilley, Kim Cavallito, Lindsay Alvarez, & Mei R. Fu Chapter 21: Pruritus, Fever, and SweatsAngel Smothers, Amanda Edwards, & Diana Niland Chapter 22: Neurological DisordersLauren Massimo, & Brianna Morgan Chapter 23: Acute DeliriumShih-Yin Lin & Donna E. McCabe Chapter 24: Anxiety and DepressionKatharine Adelstein & Elizabeth Archer-Nanda Chapter 25: FatigueStephanie Gilbertson-White & Nayung Youn Chapter 26: InsomniaPatricia Carter Chapter 27: Sedation for Refractory SymptomsChandana Banerjee & Bonnie Freeman Part III: Psychosocial and Spiritual Care Across Lifespan Chapter 28: Cultural Considerations in Palliative CareCarrie L. Cormack & Aminah Fraser-Rahim Chapter 29: Supporting Families and Family Caregivers in Palliative CareTamryn F. Gray & J. Nicholas Dionne-Odom Chapter 30: Hope and Meaning in IllnessAnessa M. Foxwell & Darcy Alimenti Chapter 31: Sexuality and Sexual Function in Serious IllnessChristina M. Wilson & Marloe V. Esch Chapter 32: Ethical Considerations in Palliative CarePhyllis B. Whitehead & Mark G. Swope Chapter 33: Addressing Spiritual, Religious, and Existential Needs in Palliative CareElizabeth Johnston Taylor & William E. Rosa Part IV: Pediatric Palliative Care Chapter 34: Pediatric PainJuliana H. O'Brien & Gina Santucci Chapter 35: Symptom Management in Pediatric Palliative CareCamara van Breemen & Nadine Lusney Chapter 36: Values and Perspectives Influencing Goals of Care and Decision Making in Pediatric Palliative Care: Leading through UncertaintyChristina McDaniel & Jordan M. Desai Chapter 37: Communication Components for Determining Goals of Care and Advance Care Planning in Pediatric Palliative Care Deborah Lafond & Kathy Perko Chapter 38: Ethical Considerations in Pediatric Palliative CareHilary Carroll McGuire & Nicole Fernandez Chapter 39: Pediatric Spiritual Assessment and CareDianne Richoux & Judy Zeringue Chapter 40: Palliative Care in the Perinatal Setting: Neonatal Intensive Care Unit, Labor and Delivery UnitCheryl Ann Thaxton, Kathleen Ellis, & Andrea Biondi Chapter 41: Considerations for Adolescents in Pediatric Palliative CareLauren Greco & Faith Kinnear Chapter 42: Pediatric Hospice PerspectivesAlice Bass & Rebecca Turner Chapter 43: Nursing Care for the Pediatric Patient at the End-of-LifeJenna Freitas & Chelsea Heneghan Chapter 44: Grief and Bereavement in Perinatal and Pediatric Palliative CareKathie Kobler, Rana Limbo, & Betty Davies Part V: Issues in Populations of the Seriously Ill Chapter 45: Pulmonary Palliative CarePatricia A. Maani-Fogelman & Jennifer Wescoe-Singley Chapter 46: Palliative Care in Heart FailureRachel D. Wells, Avery C. Bechthold, Keith M. Swetz, & J. Nicholas Dionne-Odom Chapter 47: Palliative Care for People Living with HIVJacquelyn Slomka Chapter 48: Palliative Approaches to Dementia CareTatiana Sadak Chapter 49: Palliative Care for Persons with Liver Cirrhosis and Their Family CaregiversLouise Babikow, Christopher D. Woodrell, & Lissi Hansen Chapter 50: Palliative Care for Persons Living with End-Stage Kidney DiseaseKate Sciacca & Marissa Finger Chapter 51: Palliative Care for Persons Living with a Hematologic MalignancyAshley Leak Bryant, Lorinda A. Coombs, Samantha Mayo, Argin Malakian, & Tara Albrecht Chapter 52: Palliative Care for Persons Living with CancerDenice R. Economou, Alissa A. Ulanday, & Eden R. Brauer Part VI: Care Near the End of Life Chapter 53: Urgent Syndromes at the End of LifeChristina Feindt & Kelli Gershon Chapter 54: Sedation for Refractory SymptomsSandra Perrotta Chapter 55: Withdrawal or Cessation of Life-Sustaining Therapies: Mechanical Ventilation, Hemodialysis, Cardiac DevicesMargaret L. Campbell, Alvin H. Moss, & Sarah E. Schroeder Chapter 56: Palliative Care and Requests for Assistance in DyingKaveri Roy & Sarah Rossmassler Chapter 57: Planning for DeathReiko Asano Chapter 58: Grief and BereavementInge Corless Part VII: Mode of Palliative Care Delivery Chapter 59: Hospice and Community-Based Palliative CareKaren Hyden, Maura Lipp, & Tammy Stokes Chapter 60: Telehealth, Telephonic Care, and Remote Patient MonitoringLaraine Ann Chiu, Jennifer Curtis, & Inez Brandon Chapter 61: Palliative Care Nursing in the Outpatient SettingNancy A. Robertson & Ami K. Goodnough Chapter 62: Long-term CareMelissa McClean & Joan G. Carpenter Chapter 63: Palliative Care in the Emergency DepartmentRebecca Wright & Benjamin Roberts Chapter 64: Hospital-Based Palliative CareBarbara Reville & Anessa M. Foxwell Chapter 65: The Intensive Care UnitJennifer L. McAdam, Céline Gélinas, & Kathleen Turner Part VIII: Considerations for Person and Family-Centered Palliative Care Chapter 66: Addressing Health Inequalities, Social Determinants of Health, and Underrepresented Individuals in Palliative CareBinu Koirala, Rebecca Wright, Patricia M. Davidson, Marlena C. Fisher, Katie E. Nelson, Benjamin Roberts, Danetta H. Sloan, & David S. Wu Chapter 67: Affirmative Palliative Care for LGBTQIA+ Patients and their FamiliesKailey E. Roberts, William E. Rosa, Noelle Marie Javier, Pierce DiMauro, Joshua C. Eyer, & Kristin G. Cloyes Chapter 68: Palliative Care in the Setting of Substance Use DisorderPeggy Compton, Yu-Ping Chang, & Salimah Meghani Chapter 69: Palliative Care in the Setting of Serious Mental IllnessLindsey C. Wright Chapter 70: Rural Palliative CareRichard A. Taylor, J. Nicholas Dionne-Odom, Erin R. Currie, Chunhong Xiao, & Marie A. Bakitas Chapter 71: Palliative Care for Older AdultsLaura Moreines & Lauren Hunt Chapter 72: Global Palliative Care in Low- and Middle-Income CountriesVirginia LeBaron, Thuý Ly Nguyên, & Usha Thapa Part IX: Special Considerations for Palliative Care Nurses Chapter 73: Occupational Stress, Burnout, and Self-Care in Palliative NursingErica Frechman & Patricia Wright Chapter 74: Palliative Care and Social MediaDana Hansen & Amy Petrinec Chapter 75: Career Advancement in Palliative CareKatherine Stackhouse Chapter 76: Nursing EducationAndra Davis & Megan Lippe Chapter 77: Nursing ResearchMicah A. Skeens, Amy R. Newman, & Kathleen E. Montgomery Chapter 78: Developing and Implementing Quality Improvement Programs Across SettingsSean M. Reed