Being Participatory: Researching with Children and Young People

Professor Imelda Coyne is a children's nurse who cares passionately about children's rights and welfare. In her current position as Professor of Children’s Nursing and Director of Trinity Research in Childhood Centre (Trinity College Dublin Ireland) she leads a team of lecturers and researchers in the delivery of high-quality teaching, clinical practice, and research. The central theme underpinning her program of research is valuing children’s and young people’s voices and promoting their participation in matters that affect their lives. Her program of research includes: shared decision-making; family-centred care; chronic illness management and transition from child to adult services. She has over 200 publications in peer-reviewed journals and has written/co-authored fifteen chapters and five books. She presented widely (more than 150 papers) including many invited keynote presentations and delivered workshops internationally. She is the Editor-in-Chief of the InternationalJournal of Adolescent Medicine and Health (IJAHM) and a member of two editorial boards: Nursing Children and Young People; and Nursing & Health Sciences. She is a Fellow of Trinity College Dublin, Fellow of the European Academy of Nursing Science and a Fellow of the American Academy of Nursing. Professor Bernie Carter is a children’s nurse who has a long-term commitment to participation and the importance of participation to the ways in which practitioners and researchers work with children, young people, and their families. She works at Edge Hill University where she contributes to and co-leads the Children, Young People and Families Research Group. She was the Director of the Children’s Nursing Research Unit (CNRU) at Alder Hey Children’s NHS Foundation Trust. Her research uses innovative, arts-based, creative methods to engage with children and young people in ways that resonate with their skills, capacities and interests. She has published over 200 peer-reviewed articlesand more than 60 editorials. She has written and edited books on pain, researching with children, and children’s nursing and contributed chapters to books. Much of this work is highly relevant to the areas covered by this book. She is Associate Editor for Frontiers in Pediatric Pain. She was Editor-in-Chief for the Journal of Child Health Care (Sage Publications) for 23 years. She is a Fellow of the Royal College of Nursing and a Fellow of the Higher Education Academy.

• Chapter 1. Participatory Research in the Past, Present and Future.- Chapter 2. Principles of Participatory Research .- Chapter 3. Ethical Issues in Participatory Research with Children and Young People.- Chapter 4. Contribution of Participatory Research with Children and Young People to Policy.- Chapter 5. Being Participatory Through Play.- Chapter 6. Being Participatory Through Interviews.- Chapter 7. Being Participatory Through Photo-Based Images.- Chapter 8. Being Participatory Through the Use of App-Based Research Tools.- Chapter 9. Being participatory through animation.- Chapter 10. Being participatory through videography.- Chapter 11. Does Participatory Research Genuinely Extend the Sphere of Participation for Children and Young People?.