What About the Family?

Practices of Responsibility in Care

Inbunden, Engelska, 2019

AvHilde Lindemann,Janice McLaughlin,Marian A. Verkerk,Michigan State University) Lindemann, Hilde (Professor of Philosophy, Professor of Philosophy,Newcastle University) McLaughlin, Janice (Professor of Sociology, Professor of Sociology,University of Groningen) Verkerk, Marian A. (Professor, Faculty of Medical Sciences, Professor, Faculty of Medical Sciences

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Health and social care decisions, and how they impact a family, are often viewed from the perspective of the individual family member making them--for example, the role of the parent in surrogacy questions, the care of the elderly, or decisions that involve fetuses or organ donations. What About the Family? represents a concerted, collaborative effort to depart from this practice--it rather shows that the family unit as a whole is intrinsic and inseparable from patient's ethical decisions. This deeper level of thinking about families and health care poses an entirely new set of difficult questions. Which family members are relevant in influencing a patient? What is a family, in the first place? What duties does a family have to its own members? What makes an ethics of families distinctive from health care ethics, an ethic of care or feminist ethics is that it theorizes relationships characterized by ongoing intimacy and partiality among people who are not interchangeable, and remains centered on the practices of responsibility arising from these relationships. What About the Family? edited by bioethicists Hilde Lindemann, Marian Verkerk, and Janice McLaughlin, represents an interdisciplinary effort, drawing, among other resources, on its authors' backgrounds in sociology, nursing, philosophy, bioethics, and the medical sciences. Contributors begin from the assumption that any ethical examination of the significance of family ties to health and social care will benefit from a dialogue with the debates about family occuring in these other disciplinary areas, and examine why families matter, how families are recognized, how families negotiate responsibilities, how families can participate in treatment decision making, and how justice operates in families.

Produktinformation

Utgivningsdatum2019-05-30
Mått211 x 145 x 20 mm
Vikt340 g
FormatInbunden
SpråkEngelska
Antal sidor208
FörlagOUP USA
ISBN9780190624880

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Hilde Lindemann is Emerita Professor of Philosophy at Michigan State University. A Fellow of the Hastings Center and a past president of the American Society for Bioethics and Humanities, her ongoing research interests are in feminist bioethics, feminist ethics, the ethics of families, and the social construction of persons and their identities. She is the former editor of The Hastings Center Report as well as of Hypatia: A Journal of Feminist Philosophy.Marian Verkerk is Full Professor Ethics of Care at the University Medical Centre of Groningen (UMCG) and the University of Groningen. She is interested in exploring how questions of morality and ethics are embedded in relational perspectives and experiences of care. She was previously program leader of an international research consortium on Ethics of Families. Since 2017 she has served as project leader on Patient Engagement at the UMCG.Janice McLaughlin is Professor of Sociology at Newcastle University. Her research interests focus on childhood disability and the examination of its surrounding social and institutional worlds, including family. Though a sociologist, she draws from associated disciplines such as anthropology and bioethics, with a strong emphasis on empirical qualitative research. Her most recent book (with Edmund Coleman-Fountain and Emma Clavering) is Disabled Childhoods: Monitoring Differences and Emerging Identities (Routledge, 2018).

Introduction: Hilde Lindemann, Janice McLaughlin, and Marian VerkerkChapter 1: Why Families Matter, Hilde LindemannCase Study: Lesbian Parents' Search for "The Right Way" to Disclose Donor Conception to Their Children, Veerle PrevostChapter 2: Recognizing Family, Janice McLaughlinCase Study: The Family Imperative in Genetic Testing, Lorraine CowleyCase Study: What Counts as a Family-And Who Is to Decide? Margareta HydénChapter 3: Negotiating Responsibilities, Marian A. VerkerkCase Study: Paternal Responsibility for Children and Pediatric Hospital Policies in Romania, Daniela CutaCase Study: Family Care-Giving as a Problematic Category, Jacqueline ChinChapter 4: Health Care Decisions, Ulrik Kihlbom and Christian MuntheCase Study: Family-Centeredness as Resource and Complication in Outpatient Care with Weak Adherence, Using Adolescent Diabetes Care as a Case in Point, Andre Herlitz and Christian MuntheCase Study: Annie's Problem, Jackie Leach ScullyChapter 5: Justice, Intimacy, and AutonomyJamie Lindemann Nelson and Simon WoodsCase Study: Young Carers, Gideon CalderCase Study: Autism, Family Life, and Epistemic Injustice: A Case Study, Richard Ashcroft

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