Del 10 i serien California/Milbank Books on Health and the Public

Sick To Death and Not Going to Take It Anymore!

Reforming Health Care for the Last Years of Life

Inbunden, Engelska, 2004

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Just a few generations ago, serious illness, like hazardous weather, arrived with little warning, and people either lived through it or died. In this important, convincing, and long-overdue call for health care reform, Joanne Lynn demonstrates that our current health system, like our concepts of health and disease, developed at a time when life was mostly short, serious illnesses and disabilities were common at every age, and dying was quick. Today, most Americans live a long life, with the disabilities and discomforts of progressive chronic illness appearing only during the final chapters of their life stories. Sick to Death and Not Going to Take It Anymore! maintains that health care and community services are not set up to meet the needs of the large number of people who face a prolonged period of progressive illness and disability before death. Lynn offers what she calls an "owner's manual for the health care system," which lays out facts, concepts, strategies, and action plans for genuine reform and gives the reader new ways to interpret information creatively, imagine innovative possibilities, and take steps to implement them.

Produktinformation

Utgivningsdatum2004-10-11
Mått152 x 229 x 20 mm
Vikt454 g
FormatInbunden
SpråkEngelska
SerieCalifornia/Milbank Books on Health and the Public
Antal sidor217
FörlagUniversity of California Press
ISBN9780520243002

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Joanne Lynn is Director of The Washington Home Center for Palliative Care Studies, Senior Scientist at the RAND Corporation, and President of Americans for Better Care of the Dying. She is the coauthor of Improving Care for the End of Life: A Sourcebook for Health Care Managers and Clinicians (2000) and Handbook for Mortals: Guidance for People Facing Serious Illness (1999), among other books. She has coedited several books, including A Good Dying: Shaping Health Care for the Last Months of Life (1998) and By No Extraordinary Means: The Choice to Forgo Life-Sustaining Food and Water (1986). She has also been a physician serving people living out the end of life in hospices, nursing homes, home care, and hospitals.

List of Illustrations and Tables Foreword Acknowledgments Introduction 1. JUST THE FACTS Serious Chronic Disease in the Last Phase of Life Living with Chronic Conditions . Shortcomings in Current Care .The Baby Boom Grows Old . Who Will Provide Care? . “Dying” andthe Problem of Prognostication . Which Illness Will It Be? .Costs and Who Pays . The Shape of Things to ComePERSPECTIVE: THE LONELINESS OF THE LONG TERM CARE GIVER by Carol Levine 2. SEEING THE WORLD DIFFERENTLYIdeas to Shape Reform Life Span Perspective . Rethinking the Transition Model .Misleading Words and Ideas . The “No Surprise” Question . Trajectories ofIllness across Time . Frequency of Trajectories . Anticipating Challenges .Creating and Naming a Category . More Patients, Fewer Caregivers .WorkingOut Patterns of Cost . Summary of Ideas to Shape ReformPERSPECTIVE : QUALITY COMES HOME by Donald M. Berwick 3. GOOD CARE FOR SOME PEOPLE SOMETIMES Hospice . Palliative Care at Home . Palliative Care in Hospitals . PACE:All-Inclusive Care . The Chronic-Care Model . Coordinating andManaging Care . Quality Improvement . Caregiver Programs . PracticeGuidelines and Audit Tools . Gems and Strategies for ChangePERSPECTIVE IN BRITAIN, PROGRESS IN CARE FOR THE LAST PART OF LIFE by Joanne Lynn 4. SURVERYING THE TERRAIN Opportunities and ChallengesKey Features of Change . Caregivers as a Political Force . The BusinessCase for Change . Promoting Coordinated Care . Barriersto Reform . Avoiding Low-Impact ReformsPERSPECTIVE: THE CASE FOR REFORMING U.S. HEALTH CAREby the Committee on Quality of Health Care in America, Institute of Medicine 5. GOOD CARE FOR US ALLBuilding the Care System to Count On Reprise of the Current Situation . Trajectories Form a Basis for AchievableExcellence . MediCaring: From Promises to Practical Program . Methods toAchieve Reform . Reforms to Implement Right Away! . Forging theWill to Make Improvements HappenAppendix: An Agenda for Action References Index

"Joanne Lynn is a national treasure - the most articulate, courageous, and scientifically-grounded voice in our nation for the improvement of health care for people approaching the end of life. For the public and professionals alike, her work provides motivation and sound guidance for building the care system we need, a system that we do not yet, by any means, have." - Donald M. Berwick, M.D., M.P.P., President and CEO, The Institute for Healthcare Improvement"