Patient-Reported Outcomes and Experience

Tim Benson has spent most of his career in health care. He joined the NHS to lead the evaluation of new computer systems being introduced at the Charing Cross Hospital in London. There he met some of the pioneers of healthcare outcome measures and saw their potential.He went on to establish one of the first GP computer suppliers, which developed problem-oriented patient records for use in the consulting room and the Read Codes, which led to SNOMED CT. Later, he began to develop a new generation of patient and staff-reported outcome and experience measures, which led to founding R-Outcomes Ltd and this book.

• Part I The Basics.- Why PROMs and PREMs matter.- Terms.- Data collection.- Analysis.- Part II The Measures.- Measures.- Patient experience.- Health status.- Wellbeing.- Health confidence.- How people live.- Individualised measures.- Innovation evaluation.- Proxies.- Part III Special Topics.- Early history of PROMs.- Noise and complexity.- Interoperability.- QALYs and Load.- Conclusions.- Appendix.- Index.