Patient Education for People with Parkinson's Disease and their Carers

Dr Marcia Smith Pasqualini is a clinical and academic neuropsychologist, currently working as an associate professor at Avila University in Kansas City, Missouri, USA. She received her Bachelor of Science degree from Tulane University and her PhD from the University of Missouri-Columbia. Dr Smith Pasqualini’s primary area of research is the social neuroscience of emotion and facial expression. She was employed as a senior lecturer at the University of Portsmouth for nine years, and was the Principal Investigator for the United Kingdom for the EduPark project. Dr Gwenda Simons is a social psychologist, currently working as a research associate in the Department of Experimental Psychology at the University of Oxford. Dr Simons received her MA in social psychology from the University of Amsterdam, and her PhD from the University of Portsmouth. She has published research articles in the area of facial expression and emotion, with a particular interest in people with Parkinson’s disease. Dr Simons worked as a research associate at the University of Portsmouth for the EduPark project.

• About the Editors. Preface.Acknowledgements.Contributors.Part I: Introduction to the EduPark Programme.Chapter 1: The nature of Parkinson’s disease and the need for a multifaceted patient education programme (The EduPark Consortium).Chapter 2: Structure of the programme and guidelines for leaders (The EduPark Consortium).Part II: Programme Sessions.Session 1: Information (Pille Taba, Ülle Krikmann and Eve Kanarik).Session 2: Self-monitoring (Gwenda Simons, Marcia Smith Pasqualini and Simon Thompson).Session 3: Pleasant activities (Michael Macht, Heiner Ellgring, Christian Gerlich and Martina Schradi).Session 4: Stress management for people with PD and for carers (Anu Lankinen, Vappu Viemerö and Anne Lehtonen).Session 5: Management of anxiety and depression (for people with PD) and the carer’s challenge (for carers) (Àngels Bayés Rusiñol, Mari Cruz Crespo Maraver and Anna Prats París).Session 6: Social competence for people with PD and for carers (Noëlle G. A. Spliethoff-Kamminga and Janny de Vreugd).Session 7: Social support (Pio Enrico Ricci Bitti and Lorena Candini).Session 8: Review of the programme and a look forward (Christian Gerlich, Michael Macht, Martina Schradi and Heiner Ellgring).Part III: The EduPark Programme: Final Thoughts.The EduPark programme: Final thoughts (Marcia Smith Pasqualini and Gwenda Simons).Appendix: Assessment Scales.References.