Living With The Genome

ANGUS CLARKE is Professor in Clinical Genetics, Institute of Medical Genetics, University of Wales College of Medicine, Cardiff, UK. FLO TICEHURST is Genetics and Society Research Officer, Genetics and Society Research, The Wales Gene Park, Cardiff, UK.

• Acknowledgements List of Contributors Glossary Introduction; A.Clarke PART 1: THE HUMAN GENOME PROJECT: GENETIC RESEARCH & COMMERCIALISATION Introduction; A.Clarke & F.Ticehurst Celera Genomics: The Race for the Human Genome Sequence; M.A.Fortun Human Genome Project as a Social Enterprise; P.L.Bereano Commercialization of Human Genetic Research; T.Caulfield Patenting of Genes: A Personal View; J.Rifkin Human Genome Diversity Project (HGDP): Impact on Indigenous Communities; J.Marks deCODE and Iceland: A Critique; E.Árnason & F.Wells Informed Consent in Human Genetic Research; P.R.Reilly Gene Therapy: Expectations and Results; P.A.Martin PART 2: GENETIC DISEASE: IMPLICATIONS FOR INDIVIDUALS, FAMILIES AND POPULATIONS Introduction; A.Clarke & F.Ticehurst Genetic Counseling: Psychological Issues; B.B.Biesecker Genetic Testing of Children; A.Procter Genetic Risk; L.Prior Genetic Susceptibility; C.Emslie & K.Hunt Thrifty Gene Hypothesis: Challenges; R.McDermott Carrier Screening for Inherited Hemoglobin Disorders in Cyprus and the United Kingdom; B.Modell Carrier Screening of Adolescents in Montreal; C.R.Scriver & J.J.Mitchell PART 3: DISABILITY, GENETICS & EUGENICS Introduction; A.Clarke & F.Ticehurst Nazi Movement and Eugenics; P.Weindling Eugenics: Contemporary Echoes; T.Duster China: The Maternal and Infant Health Care Law; S.Guo Disability, Human Rights and Contemporary Genetics; T.Shakespeare Mentally Handicapped in Britain: Sexuality and Procreation; J.McCarthy, V.Sinason & S.Hollins PART 4: GENETICS & SOCIETY: INFORMATION, INTERPRETATION AND REPRESENTATION Introduction; A.Clarke & F.Ticehurst Gene as a Cultural Icon; D.Nelkin Heredity: Lay Understanding; M.Richards Inheritance and Society; P.Atkinson, A.Bharadwaj & K.Featherstone Privacy and Genetic Information; V.English & A.Sommerville Insurance and Genetic Information; T.McGleenan 'Race', IQ and Genes; J.Beckwith & J.S.Alper Criminal Responsibility and Genetics; J.Bostock & G.Adshead PART 5: GENETICEXPLANATIONS: UNDERSTANDING ORIGINS AND OUTCOMES Introduction; A.Clarke & F.Ticehurst Genetics as Explanation: Limits to the Human Genome Project; I.Cohen & H.Atlan Darwin and the Idea of Natural Selection; G.Dover Sociobiology, Evolutionary Psychology, and Genetics; P.Bateson Creationism; M.Ruse Genetics, Reductionism and Autopoiesis; S.P.R.Rose Personal Identity: Genetics and Determinism; R.Chadwick Racism, Ethnicity, Biology and Society; H.Bradby PART 6: REPRODUCTION, CLONING AND THE FUTURE Introduction; A.Clarke & F.Ticehurst In Vitro Fertilization: Regulation; D.Morgan & M.Ford Reproductive Choice; J.Harris Feminist Perspectives on Human Genetics and Reproductive Technologies; D.Dickenson Sex Selection; D.Davis Dolly and Polly; A.Petersen Cloning of Animals in Genetic Research: Ethical and Religious Issues; A.Linzey & A.Barsam Distributive Justice and Genetics; C.Farelly Reprogenetics: Visions of the Future; R.Kollek Index

'This collection of economically written articles in an economically priced volume would be a useful addition to many social scientists' bookshelves, and an excellent text for an undergraduate course on the social aspects of contemporary genetic research.' - Alex Karner, Public Understanding of Science