International Handbook of Applied Research in Intellectual Disabilities

Eric Emerson, Ph.D., is Professor of Clinical Psychology at the Institute for Health Research at Lancaster University, UK. Prior to this, he held posts at the Hester Adrian Research Centre at the University of Manchester, the Tizard Centre (University of Kent at Canterbury) and the South East Thames Regional Health Authority, and as a clinical psychologist in the UK and Canada. He has written several books and over 140 articles in academic and professional journals on issues related to supported accommodation, challenging behaviour and health/social care services for children and adults with intellectual disabilities. Chris Hatton, Ph.D., is Professor of Psychology, Health and Social Care at the Institute for Health Research at Lancaster University, UK, having previously held research posts at the Hester Adrian Research Centre, University of Manchester, UK. He has written or edited several books and almost 100 articles in academic and professional journals on a range of issues concerning people with intellectual disabilities, including the assessment of service quality, supported accommodation, staffing issues, and the experiences of people with intellectual disabilities and their families from minority ethnic communities in the UK.Travis Thompson, Ph.D., is Executive Program Director of the Minnesota Autism Center and Professor, Department of Pediatrics, University of Minnesota School of Medicine, Minneapolis, USA. He has published 24 books and more than 240 articles, chapters in journals and monographs. He has served on numerous national and international committees concerned with research, ethics, and policy. His research has focused on the environmental and biological factors underlying the challenging behaviour of people with developmental disabilities, including communication, architectural design, and genetics variables.Trevor R. Parmenter, Ph.D., holds the Foundation Chair of Developmental Disability in the Faculty of Medicine, and the Adjunct Chair in the Faculty of Education, at the University of Sydney, Australia. He is the Director of the Centre for Developmental Disability Studies in the Royal Rehabilitation Centre, Sydney. His former positions include Professorial Fellow and Director of the Unit for Community Integration Studies at Macquarie University, Australia, prior to which he held teaching and administrative positions in the New South Wales Department of Education and Training. Currently, he is the Immediate Past President of the International Association for the Scientific Study of Intellectual Disabilities. His publications include 80 articles in professional journals and 45 book chapters in the areas of disability policy, quality of life, dual diagnosis, and vocational training.

• About the Editors. List of Contributors.Preface.Section I: The Historical and Social Context of ResearchChapter 1: Historical Overviewof Applied Research in Intellectual Disabilities: The Foundation Years (Trevor R. Parmenter).Chapter 2: Cultural Issues (Chris Hatton).Chapter 3: Ethical Research Involving People with Intellectual Disabilities (Tim Griffin and Susan Balandin).Chapter 4: Emancipatory and Participatory Research: How Far Have We Come? (Paul Ramcharan, Gordon Grant and Margaret Flynn).Section II: Approaches to Measurement.Chapter 5: Interviewing People with Intellectual Disabilities (Jonathan Perry).Chapter 6: Interviewing Family Members and Care Providers: Concepts, Methodologies, and Cultures (Jan Blacher and Iris Tan Mink).Chapter 7: Participant Observation and Research on Intellectual Disabilities (Michael V. Angrosino).Chapter 8: Measurement of Behavior with a Special Emphasis on Sequential Analysis of Behavior (Paul J. Yoder, Katherine Short-Meyerson and Jon Tapp).Section III: Researching the Nature, Characteristics, and Social Context of Intellectual Disability.Chapter 9: Studying Behavioral Phenotypes: Issues, Benefits, Challenges (Robert M. Hodapp and Elisabeth M. Dykens).Chapter 10: Issues in Researching the Ageing of People with Intellectual Disability (Christine Bigby and Susan Balandin).Chapter 11: Research Methods in Intellectual Disabilities: The Family Context (Marsha Mailick Seltzer, Frank J. Floyd and Andrea R. Hindes).Chapter 12: Quality of Life and Subjective Well-Being: Conceptual and Measurement Issues (Robert L. Schalock and David Felce).Chapter 13: Investigating Inclusion: A Review of Research Methods for Individuals with Intellectual Disability (Samuel L. Odom, Katherine Klingerman and Mark Jakowski).Chapter 14: Research on Social Relationships (Craig H. Kennedy).Chapter 15: Sexuality Research and Persons with Intellectual Disabilities (Dorothy M. Griffiths, Shelley Watson, Tanya Lewis and Karen Stoner).Chapter 16: Choice (Chris Hatton).Chapter 17: Research on Engagement in Activity (David Felce and Eric Emerson).Chapter 18: Adaptive Behavior: Its Conceptualization and Measurement (Robert L. Schalock).Chapter 19: Communication and Language: Research Design and Measurement Issues (Steven F. Warren, Nancy C. Brady and Marc E. Fey).Chapter 20: Mental Health (Sally-Ann Cooper).Chapter 21: Challenging Behavior: Research Design and Measurement Issues (Edward G. Carr, John Innis, Audrey Blakeley-Smith and Shawn Vasdev).Section IV: Researching the Impact of Support Systems and Services.Chapter 22: Educational Supports (Robert E. O’Neill and Lora Tuesday Heathfield).Chapter 23: Residential Supports (Roger J. Stancliffe, Eric Emerson and K. Charlie Lakin).Chapter 24: Interaction with the Criminal Justice System (Susan Hayes).Chapter 25: Emerging Trends in Methods for Research and Evaluation of Behavioral Interventions (J. Stephen Newton and Robert H. Horner).Chapter 26: Research Issues in Cognitive Therapy (Dave Dagnan and William R. Lindsay).Chapter 27: Methodology, Design, and Evaluation in Psychotherapy Research with People with Intellectual Disabilities (Nigel Beail).Chapter 28: Methodological Issues in Psychopharmacology for Individuals with Intellectual and Developmental Disabilities (Travis Thompson, Jennifer Zarcone and Frank Symons).Chapter 29: Researching Staff (Chris Hatton, John Rose and David Rose).Chapter 30: The Economics of Intellectual Disability (Angela Hallam and Martin Knapp).Index.

“…an impressive book… great value…helpful to both researchers and practitioners…” (Int. Journal of Adolescent Medical Health, No.16, Vol.4 2004) “…well-informed chapters on the latest state of the art of a particular type of research in intellectual research...” (Disability & Society, Vol.19, No.7, December 2004)