Helping Children and Adolescents with Chronic and Serious Medical Conditions

Nancy Boyd Webb, DSW, RPT-S, recently retired from Fordham University Graduate School of Social Service where she taught in the clinical practice area for thirty years and developed a Post-Master's Certificate Program in Child and Family Therapy. Dr. Webb is a leading authority on social work and play therapy with children who have experienced trauma, various kinds of losses, and bereavement, and has published widely on these topics.

• Foreword, Barbara Sourkes, PhD xiPreface xvAcknowledgments xixPart I Overview and Introduction: Theoretical Framework for Collaborative Practice 1Chapter 1 When a Young Person’s Health Becomes Problematic 3Nancy Boyd Webb and Rose A. BartoneChapter 2 The Emotional Impact of a Young Person’s Illness on the Family 21Cindy Dell ClarkChapter 3 The Economic, Social, and Cultural Context of Health Care 35Virginia Rondero HernandezPart II Helping Approaches of Practitioners in Different Settings 57Chapter 4 A Behavioral Pediatrician’s Perspective on Helping Children Recover from Traumatic Medical Experiences 59Joan LovettChapter 5 Child Life Practice in Hospitals 73Deborah VilasChapter 6 Working with Families of Medically Challenged Youth 89Jennifer BaggerlyChapter 7 School-Based Interventions for Children and Youth with Medical Conditions 105Suzanne C. Griffith and Rosemary DoyleChapter 8 School Social Work Interventions for Medically Compromised Youth and Families 121Linda OpenshawChapter 9 Strengths-Based Group Work with Children 137Ariel Allena BottaChapter 10 Play and Expressive Therapies with Medically Challenged Children and Adolescents 155Nancy Boyd WebbChapter 11 Meeting the Spiritual Needs of Children with Chronic and Life-Threatening Illness 171Paul ThayerPart III Challenges and Issues Associated with Chronic, Ongoing, or Recurring Physical Conditions and Disabilities 187Chapter 12 Medical Conditions Present at Birth 189Patrick ShannonChapter 13 Medical Conditions That Appear During Early Childhood 205Roxia B. BullockChapter 14 Other Conditions That May Occur in Childhood or Develop in Adolescence 225M. Carlean GilbertPart IV Acute Health Crises 241Chapter 15 Outpatient Counseling for Children and Youth with Life-Threatening Conditions 243Douglas Davies and Nancy Boyd WebbChapter 16 Hospital Treatment of Children and Youth with Life-Threatening Conditions 269Elaine C. MeyerChapter 17 Helping in the Emergency Room after Accidents and Traumatic Injury 285Leslie H. WindPart V Challenges and Guidelines for Helping 303Chapter 18 The Challenge of Maintaining Hope and Fostering Resiliency: Implications for Youth, Families, and Practitioners 305Nancy Boyd WebbAppendixChild-, Youth-, and Family-Health-Related Professional Organizations 317Training Programs and Certificates Related to Helping Medically Challenged Youth and Families 321Child-, Youth-, and Family-Health-Related Professional Journals 324Additional Health-Related Resources for Youth and Families 330About the Editor 335About the Contributors 337Author Index 341Subject Index 351

"Helping Children and Adolescents with Chronic and Serious Medical Conditions provides a wellspring of knowledge, from the theoretical to the clinical. The many vignettes and transcriptions immeasurably enrich the reader's understanding of the interventions and their broader applicability."—Barbara M. Sourkes, PhDJohn A. Kriewall and Elizabeth A. Haehl Director of Pediatric Palliative Care Lucile Packard Children's Hospital at Stanford