Dr. Richard Kitchen is a Consultant in Palliative Medicine and Principal Editor.Professor Christina Faull is a Consultant in Palliative Medicine and Principal Editor of the first three editions.Dr. Sarah Russell is a Nurse Consultant and Trust Lead for Palliative and End of Life Care.Dr. Jo Wilson is a Palliative Care Consultant Nurse and Trust Lead for End of Life Care and Advance care planning.

• List of Contributors viiForeword xPreface xiiAcknowledgements xiii1 The Context and Principles of Palliative Care 1Christina Faull2 Patient and Public Involvement in Palliative Care 16John Rosenberg and Kerrie Noonan3 Equity, Diversity, and Inclusion in Serious Illness 25Noura Rizk, William E. Rosa and Liz Grant4 Palliative Care in the Community 39Matthew Doré, Catherine Millington-Sanders, Rachel Campbell, Paul Thomas, Laura Calamos, Rachael Marchant, Carolyn Doyle, Rachel Lukwago, Karen Hodson and Susan van Beveren5 Hospital Palliative Care 53Paul W. Keeley6 Ethics in Palliative Care Practice 67Derek Willis7 Conversations and Communication 76Sarah Russell8 Integrating New Perspectives: Working with Loss and Grief in Palliative Care 89Nikki Archer and Linda Machin9 Recognising Deterioration, Preparing, and Planning for Dying 104Jo Wilson and Sarah Russell10 Pain and Its Management 116Richard Kitchen11 The Management of Gastrointestinal Symptoms and Advanced Liver Disease 138Andrew Chilton, Christina Faull, Wendy Prentice and Monica Compton12 The Management of Respiratory Symptoms and Advanced Chronic Obstructive Pulmonary Disease 159Frances Hakkak13 Managing Complications of Cancer 175Lesley Charman, Rachael Barton and Katie Spencer14 Handbook of Palliative Care: Palliative Care for People with Progressive Neurological Disorders 203David Oliver and Idris Baker15 ‘Palliative Care for Infants, Children, and Young People’ 218Yifan Liang16 Palliative and End of Life Care: Frailty, dementia and multi-morbidity 230Sarah Russell17 Palliative Care in Advanced Heart Failure 242Amy Gadoud18 Palliative Care in Advanced Renal Disease, 254Jo Wilson and Jenny Cross19 Palliative Care for People Living with Mental Illness and People with Intellectual Disabilities 269Jed Jerwood and Gemma Allen20 Care in the Last Days of Life and after Death 283Nikhil Sanyal and Alistair Duncan21 Medicines Management in Palliative Care Including Syringe Drivers 306Kerry Parker and Michelle Aslett22 Spirituality in Palliative Care 328Margaret Holloway23 Creating Space, Clarity, and Containment in order to Sustain Staff: Managing the Emotional Impact of Palliative Care Work 338Barbara Wren24 Patient/Individual and Carer Wellbeing 348Tes SmithIndex 364

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Dr. Richard Kitchen is a Consultant in Palliative Medicine and Principal Editor.Professor Christina Faull is a Consultant in Palliative Medicine and Principal Editor of the first three editions.Dr. Sarah Russell is a Nurse Consultant and Trust Lead for Palliative and End of Life Care.Dr. Jo Wilson is a Palliative Care Consultant Nurse and Trust Lead for End of Life Care and Advance care planning.

• List of Contributors viiForeword xPreface xiiAcknowledgements xiii1 The Context and Principles of Palliative Care 1Christina Faull2 Patient and Public Involvement in Palliative Care 16John Rosenberg and Kerrie Noonan3 Equity, Diversity, and Inclusion in Serious Illness 25Noura Rizk, William E. Rosa and Liz Grant4 Palliative Care in the Community 39Matthew Doré, Catherine Millington-Sanders, Rachel Campbell, Paul Thomas, Laura Calamos, Rachael Marchant, Carolyn Doyle, Rachel Lukwago, Karen Hodson and Susan van Beveren5 Hospital Palliative Care 53Paul W. Keeley6 Ethics in Palliative Care Practice 67Derek Willis7 Conversations and Communication 76Sarah Russell8 Integrating New Perspectives: Working with Loss and Grief in Palliative Care 89Nikki Archer and Linda Machin9 Recognising Deterioration, Preparing, and Planning for Dying 104Jo Wilson and Sarah Russell10 Pain and Its Management 116Richard Kitchen11 The Management of Gastrointestinal Symptoms and Advanced Liver Disease 138Andrew Chilton, Christina Faull, Wendy Prentice and Monica Compton12 The Management of Respiratory Symptoms and Advanced Chronic Obstructive Pulmonary Disease 159Frances Hakkak13 Managing Complications of Cancer 175Lesley Charman, Rachael Barton and Katie Spencer14 Handbook of Palliative Care: Palliative Care for People with Progressive Neurological Disorders 203David Oliver and Idris Baker15 ‘Palliative Care for Infants, Children, and Young People’ 218Yifan Liang16 Palliative and End of Life Care: Frailty, dementia and multi-morbidity 230Sarah Russell17 Palliative Care in Advanced Heart Failure 242Amy Gadoud18 Palliative Care in Advanced Renal Disease, 254Jo Wilson and Jenny Cross19 Palliative Care for People Living with Mental Illness and People with Intellectual Disabilities 269Jed Jerwood and Gemma Allen20 Care in the Last Days of Life and after Death 283Nikhil Sanyal and Alistair Duncan21 Medicines Management in Palliative Care Including Syringe Drivers 306Kerry Parker and Michelle Aslett22 Spirituality in Palliative Care 328Margaret Holloway23 Creating Space, Clarity, and Containment in order to Sustain Staff: Managing the Emotional Impact of Palliative Care Work 338Barbara Wren24 Patient/Individual and Carer Wellbeing 348Tes SmithIndex 364

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Dr. Richard Kitchen is a Consultant in Palliative Medicine and Principal Editor.Professor Christina Faull is a Consultant in Palliative Medicine and Principal Editor of the first three editions.Dr. Sarah Russell is a Nurse Consultant and Trust Lead for Palliative and End of Life Care.Dr. Jo Wilson is a Palliative Care Consultant Nurse and Trust Lead for End of Life Care and Advance care planning.

• List of Contributors viiForeword xPreface xiiAcknowledgements xiii1 The Context and Principles of Palliative Care 1Christina Faull2 Patient and Public Involvement in Palliative Care 16John Rosenberg and Kerrie Noonan3 Equity, Diversity, and Inclusion in Serious Illness 25Noura Rizk, William E. Rosa and Liz Grant4 Palliative Care in the Community 39Matthew Doré, Catherine Millington-Sanders, Rachel Campbell, Paul Thomas, Laura Calamos, Rachael Marchant, Carolyn Doyle, Rachel Lukwago, Karen Hodson and Susan van Beveren5 Hospital Palliative Care 53Paul W. Keeley6 Ethics in Palliative Care Practice 67Derek Willis7 Conversations and Communication 76Sarah Russell8 Integrating New Perspectives: Working with Loss and Grief in Palliative Care 89Nikki Archer and Linda Machin9 Recognising Deterioration, Preparing, and Planning for Dying 104Jo Wilson and Sarah Russell10 Pain and Its Management 116Richard Kitchen11 The Management of Gastrointestinal Symptoms and Advanced Liver Disease 138Andrew Chilton, Christina Faull, Wendy Prentice and Monica Compton12 The Management of Respiratory Symptoms and Advanced Chronic Obstructive Pulmonary Disease 159Frances Hakkak13 Managing Complications of Cancer 175Lesley Charman, Rachael Barton and Katie Spencer14 Handbook of Palliative Care: Palliative Care for People with Progressive Neurological Disorders 203David Oliver and Idris Baker15 ‘Palliative Care for Infants, Children, and Young People’ 218Yifan Liang16 Palliative and End of Life Care: Frailty, dementia and multi-morbidity 230Sarah Russell17 Palliative Care in Advanced Heart Failure 242Amy Gadoud18 Palliative Care in Advanced Renal Disease, 254Jo Wilson and Jenny Cross19 Palliative Care for People Living with Mental Illness and People with Intellectual Disabilities 269Jed Jerwood and Gemma Allen20 Care in the Last Days of Life and after Death 283Nikhil Sanyal and Alistair Duncan21 Medicines Management in Palliative Care Including Syringe Drivers 306Kerry Parker and Michelle Aslett22 Spirituality in Palliative Care 328Margaret Holloway23 Creating Space, Clarity, and Containment in order to Sustain Staff: Managing the Emotional Impact of Palliative Care Work 338Barbara Wren24 Patient/Individual and Carer Wellbeing 348Tes SmithIndex 364

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