Del i serien A Johns Hopkins Press Health Book

Gift of Time

Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief

Inbunden, Engelska, 2011

AvAmy Kuebelbeck,Deborah L. Davis

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A Gift of Time is a gentle and practical guide for parents who decide to continue their pregnancy knowing that their baby's life will be brief. When prenatal testing reveals that an unborn child is expected to die before or shortly after birth, some parents will choose to proceed with the pregnancy and to welcome their child into the world. With compassion and support, A Gift of Time walks them step-by-step through this challenging and emotional experience-from the infant's life-limiting prenatal diagnosis and the decision to have the baby to coping with the pregnancy and making plans for the baby's birth and death. A Gift of Time also offers inspiration and reassurance through the memories of numerous parents who have loved a child who did not survive. Their moving experiences are stories of grief-and of hope. Their anguish over the prenatal diagnosis turns to joy and love during the birth of their child and to gratitude and peace when reflecting on their baby's short life. Full of practical suggestions for parents and for caregivers, A Gift of Time also features the innovative concept of perinatal hospice and palliative care.Caring and thoughtful, the book helps parents embrace the extraordinary time they will have with their child.

Produktinformation

Utgivningsdatum2011-04-12
Mått152 x 229 x 31 mm
Vikt703 g
FormatInbunden
SpråkEngelska
SerieA Johns Hopkins Press Health Book
Antal sidor408
FörlagJohns Hopkins University Press
ISBN9780801897610

Tillhör följande kategorier

Graviditet, förlossning och barnavård inom Hälsa och familj

Amy Kuebelbeck, a former reporter and editor for the Associated Press, wrote about her experience losing a child in Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life. Deborah L. Davis, Ph.D., is a developmental psychologist and expert in the emotional aspects of neonatal medical ethics and perinatal bereavement. She is the author of Empty Cradle, Broken Heart: Surviving the Death of Your Baby.

Introduction1. The News: Receiving Your Baby's DiagnosisBefore the DiagnosisUnderstanding Diagnostic Prenatal TestingReceiving the NewsThe Immediate Emotional Storm2. What Now? Making Decisions about Continuing Your PregnancyFacing the DecisionOptions PresentedPerinatal Hospice and Palliative CareGathering InformationSorting through Your ValuesMaking Decisions with Your PartnerConsulting with People You TrustDeciding to Continue3. The Emotional Journey: Grieving and Adjusting to Your New PathAnticipatory GriefAn Overview of the Grieving ProcessEvolving EmotionsConfronting FearsTechniques for CopingYou and Your Grieving PartnerYour Other ChildrenSpiritual and Philosophical AspectsLiving in the Twilight of DeathReclaiming HopeYour Reorientation and Adjustment4. Waiting with Your Baby: Settling in for the Rest of Your PregnancyInteracting with OthersFinding SupportGetting Appropriate Medical CareEmbracing the Time Remaining5. Making Medical Decisions: Choosing Care for Your BabyResearching Your Baby's ConditionResearching Your Baby's Treatment OptionsAmbivalence about Medical DecisionsSeeking Outside AdviceDeciding to Wait and SeeOpting for Hospice and Palliative Care6. Getting Ready: Preparing for Your Baby's Birth, Life, and DeathBirth PlanningWishes for after Your Baby's BirthIncluding Your Baby's SiblingsIncluding Your Family and FriendsOther Practical PreparationsPreliminary Funeral and Burial PlanningGetting Closer to Birth7. Welcoming Baby: Birth Experiences and Meeting Your BabyApproaching the Time of BirthWhen Birth Is ImminentMeeting Your BabyIf Your Baby Lives after BirthTaking Baby Home8. Saying Goodbye: Holding On and Letting GoParenting Your Dying BabyThe Dying ProcessExperiences with Babies as They Are DyingTime with Your Baby after DeathDecisions about Your Baby's BodyRelinquishing Your Baby's BodyFunerals and Memorial ServicesYour Baby's Final Resting Place9. Continuing Your Journey: After Your Baby DiesThe Mother's Postpartum RecoveryYour Grieving Process ContinuesIdentifying Your FeelingsMore Techniques for CopingRegrets and Making Peace with ThemYou and Your PartnerYour Other ChildrenDealing with the Outside WorldSubsequent Pregnancies10. ReflectionsReflections on Your JourneySpiritual Beliefs and StrugglesLong-term Reflections on Grief and HealingPersonal TransformationIf You Could Reach Back in Time . . .Moving Forward with GratitudeAppendix: Sample Birth PlanNotesIndex

This book is an insightful resource for those who have been there and for those who will someday live through such an experience. -- Kathy Benson Exhale: A Literary Magazine 2011 A Gift of Time is a gift. With their beautiful writing, the authors honor the families who contributed to this book, comfort the families who will, sadly, need to make use of this book, and deepen and enrich every reader's human experience... We owe them our gratitude. -- Dia Boyle MercatorNet.com 2011