Genetics from Laboratory to Society

RUTH BENSCHOP University of Maastricht, the Netherlands MARIANNE BOENINK University of Twente, the Netherlands KLASIEN HORSTMAN University of Maastricht, the Netherlands INE VAN HOYWEGHEN University of Maastricht, the Netherlands CARIN SMAND University of Maastricht, the Netherlands and the Dutch Transplantation Foundation REIN VOS University of Maastricht, the Netherlands GERARD DE VRIES University of Amsterdam, the Netherlands and Scientific Council for Government Policy, The Hague, the Netherlands MYRA C.B.VAN ZWIETEN Academic Medical Center, Amsterdam, the Netherlands.

• Preface Notes on Contributors The 'Unknown' Practice of Genetic Testing; G.de Vries Constructing Results in Prenatal Diagnosis; Beyond Technological Testing and Moral Decision Making; M.van Zwieten Genetic Diagnostics for Hereditary Breast Cancer - Displacement of Uncertainty and Responsibility; M.Boenink Lifestyle, Genes and Cholesterol: New Struggles about Responsibility and Solidarity; K.Horstman Detecting Familial Hypercholesterolemia: Escaping the Family History?; K.Horstman & C.Smand Genetics and Insurance: New Technologies, New Policies, New Responsibilities; I.van Hoyweghen Work, Health and Genetics: Problems of Regulation in a Changing Society; R.Benschop & G.de Vries Genetic Risks and Justice in the Workplace: The End of the Protection Paradigm?; R.Vos Learning From The Work That Links Laboratory to Society; G.de Vries & K.Horstman Bibliography Index

'...provides a rich understanding of the social context and complexities of genetic testing, across a range of disorders and including both micro-level, family-specific aspects of genetic testing and the social, third-party areas of insurance and employment...I recommend it highly.' - Angus J. Clarke, Human Genetics