Genetics, Ethics and Education

Susan Bouregy served for thirteen years as the Director of the Yale University Human Subjects Committee and currently serves as Chief HIPAA Privacy Officer at Yale University, Connecticut. Elena L. Grigorenko is a Distinguished Professor of Psychology and Director of the Human Genetics Lab at the University of Houston, and is also affiliated with the Baylor College of Medicine, Yale University, Connecticut, and Moscow State University for Psychology and Education and St Petersburg State University. Stephen R. Latham is the Director of Yale University's Interdisciplinary Center for Bioethics, and faculty chair of its Human Subjects Committee. Mei Tan is a graduate research assistant in the Department of Psychology and Texas Institute of Measurement, Evaluation and Statistics at the University of Houston.

• Introduction Susan Bouregy, Elena L. Grigorenko, Mei Tan and Stephen R. Latham; 1. What is heritability and why does it matter? Mei Tan; 2. Molecular genetics and genomics Sergey Kornilov; 3. Can (and should) we personalize education along genetic lines? Lessons from Behavioral Genetics Kathryn Asbury, Kaili Rimfeld and Eva Krapohl; 4. Early adversity and epigenetics: implications for early care and educational policy Katherine Beckmann and Kieran O'Donnell; 5. Intelligence: the ongoing quest for its etiology Elena L. Grigorenko and Samuel D. Mandelman; 6. A behavioral genetic perspective on noncognitive factors and academic achievement Elliot M. Tucker-Drob and K. Paige Harden; 7. Precision education initiative: the possibility of personalized education Callie Little, Connie Barroso and Sara A. Hart; 8. Using genetic etiology to intervene with students with intellectual disabilities Robert M. Hodapp and Marisa H. Fisher; 9. Ethical implications of behavioral genetics on education Victoria J. Schenker and Stephen A. Petrill; 10. Genomic literacy and the communication of genetic and genomic information Kimberly A. Kaphingst; 11. Legal issues associated with the introduction of genetic testing to the education system David Peloquin and Mark Barns; 12. Ethical risks and remedies in social behavioral research involving genetic testing Celia B. Fisher; 13. Development of the personal genomics industry Jorge L. Contreras and Vikrant G. Deshmukh; 14. Ethical issues in using genomics to influence educational practice Susan Bourgey and Krista Bouregy; 15. Teaching and genetic/genomic variation: an educator's perspective Judi Randi; 16. Will the next Einstein get left in the petri dish? Be careful what you wish for in the designer baby era Carolyn D. Cowen; Conclusion Stephen R. Latham.

'The price of genome sequencing has dropped from an initial $2.7 billion to $1,000 today. Stand-alone cancer centers now advertise treatments tailored to one's own genome, without providing evidence of their enhanced effectiveness. Educational applications are not far behind, despite profound ethical issues having been largely neglected. Genetics, Ethics, and Education represents a timely, insightful, and comprehensive analysis of critical questions and issues surrounding genetically-informed educational practice.' Rick Wagner, Florida State University