Genetic Transparency? Ethical and Social Implications of Next Generation Human Genomics and Genetic Medicine

Malte Dreyer is associated at the Institute of Philosophy at the University of Marburg. 2012-2013 he was Scientific Officer of the project “Genetic Transparency” at the Institute for History of Medicine and Science Studies at the Universität of Lübeck. Current research interests include especially philosophy of science.Jeanette Erdmann, Dr. rer. nat. (1996), University of Cologne,, Germany, is director of the Institute for Integrative and Experimental Genomics at the University of Lübeck (since 2013). Her research interest is the complex genetics of cardiovascular diseases.Christoph Rehmann-Sutter, Dr. phil. (1995), Technical University of Darmstadt, is Professor of Theory and Ethics in the Biosciences at the University of Lübeck, Germany. He has published monographs and many articles in philosophy, mainly ethics of of genetics, medicine and the life sciences, including Zwischen den Molekülen. Beiträge zur Philosophie der Genetik (Francke, 2005).

• Introduction: Christoph Rehmann-Sutter, Malte Dreyer and Jeanette Erdmann 1. Christoph Rehmann-Sutter and Malte Dreyer: The Idea of ‘Genes’ and Their ‘Transparency’2. Benedikt Reiz, Jeanette Erdmann and Christoph Rehmann-Sutter: Making Genomes Visible3. Angeliki Kerasiou, Cathy Herbrand and Malte Dreyer: Who is the Subject of Genetic Responsibility?4. Teresa Finlay, Shannon Gibson, Lene Koch and Sara Toccheti: Personal Genomics: Transparent to Whom?5. Kirsten Brukamp, Gabrielle M. Christenhusz and Caroline Fündling: Genetic Transparency versus Genetic Privacy – The Complex Ethics of Genetic Testing in Humans6. Andrei Famenka, Shannon Gibson and Fruzsina Molnár-Gábor: Understanding the Complexity of Regulation in an Evolving Health Technology Landscape7. Gabrielle M. Christenhusz, Lorraine Cowley, Tim Ohnhäuser and Vasilija Rolfes: Genetic Transparency – Transparency of CommunicationAbout the AuthorsIndex

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