Advocacy in Neurology

Professor Wolfgang Grisold is a Neurologist at Ludwig Boltzmann Institute for Experimental and Clinical Traumatology, Vienna, Austria. His main research interests are in general neurology , neuro-oncology, palliative care, and neuromuscular disease. He has experience in hospital/institutional neurology and also general neurology and neuromuscular disease in private/office settings.Associate Professor Walter Struhal is a Neurologist and Chair of the Department of Neurology at University Clinic Tulln, Karl Landsteiner University of Health Sciences, Tulln, Austria. His main research interests are in neurointensive care medicine, neurodegenerative diseases, and the autonomic nervous system, as well as medical postgraduate education. Dr Thomas Grisold is a Research and Teaching Associate at Vienna University of Economics and Business, Vienna, Austria and he is studying a PhD in business and management. His main research interests are around the concept of organizational unlearning which refers to periods when organizations intentionally seek to get rid of established knowledge structures in order to create and implement new ones. Having a background in cognitive science, he aims to complement management research with interdisciplinary perspectives from neuroscience and philosophy.

• Section 1: What is advocacy? 1: Wolfgang Grisold, Walter Struhal, and Thomas Grisold: What is advocacy? 2: Thomas Grisold and Oliver Lukitsch: Taking an epistemological perspective on advocacy 3: Wolfgang Maderthaner and Wolfgang Grisold: Advocacy in history and culture 4: Jan J. Heimans: Ethical issues in neurology 5: Tissa Wijeratne, Essie Low, and Christopher Neil: Physician, autonomy, and pharmaceutical industry 6: Mohammad Wasay: Advocacy, campaigning , lobbying: Good or bad? Section 2: Why is advocacy needed? 7: Wolfgang Grisold: Knowledge and science is not enough 8: Mohammad Wasay: Perspectives on advocacy of medical doctors 9: Hanneke Zwinkels: Advocacy and the perspective of (neurology) nursing 10: Helen Bulbeck: Patient and caregiver advocacy 11: Françoise Van Hemelryck: Patient involvement in European cancer societies: The example of ECCO - the European CanCer Organization 12: Mustapha El Alaoui Faris: Advocacy for neurology in migrants 13: Apoorva Pauranik: Advocacy for neurology: Local, regional, national 14: Raad Shakir: Advocacy in the international arena 15: Jes Olesen and Frédéric Destrebecq: Working with others, the lesson of the European Brain Council 16: Richard Pichler: SOS children's villages: Re-discovering advocacy to increase relevance and impact. A high level case study Section 3: What tools can be used for advocacy? 17: Walter Struhal and Thomas Grisold: Project management techniques for advocates 18: Wolfgang Grisold, Anna Klicpera, and Thomas Grisold: International advocacy: Case studies and lessons learnt 19: Birgit Kofler: Using PR tools for advocacy Section 4: Advocacy in different neurological diseases 20: Tissa Wijeratne, Sheila Crewther, and David Crewther: Advocacy for stroke 21: Christoph Thalheim: Two decades of patient advocacy in Multiple Sclerosis: The success story of the European MS Platform 22: Albert C. Ludolph: Advocacy in amyotrophic lateral sclerosis 23: Elaine C. Jones and John D. England: Neuromuscular disorders and advocacy 24: Francesca Mancini and Carlo Colosimo: Advocacy for movement disorders 25: Riccardo Soffietti, Christine Marosi, Roberta Rudà, and Wolfgang Grisold: Advocacy for brain tumours 26: Gorazd B. Stokin: Advocacy in dementia 27: Fritz Zimprich: Advocating for orphan diseases in neurology 28: David Oliver: Palliative care 29: Jules C. Beal and Solomon L. Moshe: Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy 30: Timothy J. Steiner and Jes Olesen: Advocacy for patients with headache 31: Ligia Onofrei and A. Gordon Smith: Advocacy for patients with neuropathic pain Section 5: Outlook, follow-up, results, ending, conclusion, and debriefing 32: Wolfgang Grisold and Thomas Grisold: Continuation or ending and 'debriefing' 33: Wolfgang Grisold, Walter Struhal, and Thomas Grisold: Results, outlook, and goals of this book

This is a remarkable book, the first compendium I've seen that deals with advocacy in neurology. ... not only is this book good for the field, it is highly personal and reads at times as narrative with great stories. This the best book on this subject. I recommend it highly.