Anne Good has now retired from public service after decades engaged with disability research, including its ethical dimension nationally and internationally. Good is now an independent Sociologist, Researcher and Writer who maintains a keen interest in social justice and equality.Iris Elliott leads the Policy and Research Department in Ireland’s National Human Rights and Equality Institution. She is a Fellow of the Royal Society of Arts in recognition of her outstanding contribution and commitment to mental health.Sharon Mallon is Senior Mental Health Lecturer at the University of Staffordshire. She has a strong interest in the ethical impact of researching sensitive subjects.

• Introduction; Sharon Mallon, Anne Good and Iris Elliott Chapter 1. Systemic Change in Research Ethics for the UNCRPD Knowledge Base: Mapping a Way Forward; Anne Good and Gary Allen Chapter 2. Ethical and Legal Issues in the Collection, Use, and Dissemination of Data on Disability; Daniel Mont Chapter 3. The Importance of Definition of Terms in Disability Research; Jennifer Madans Chapter 4. Ethical Inclusion and Participation of People with Disability in Research: Problematising Vulnerability; Damian Mellifont, Annmaree Watharow, Sheelagh Daniels-Mayes, Jennifer Smith-Merry and Mary-Ann O’Donovan Chapter 5. On Surviving Race with Allies: Disability, Race / Ethnicity and Human Rights; Celia Brown, Clarencetine (Teena) Brooks, Jonathan P. Edwards, Chyrell D. Bellamy and Kathleen O’Hara. Chapter 6. The Role of an Ethics Committee in Co-produced Research: The Experience of the Disability Research on Independent Living and Learning (DRILL) Project; Alison Koslowski, Bronagh Byrne, Jackie Gulland and Peter Scott Chapter 7. Communicating Evidence for Impact; Iris Elliott Chapter 8. Conclusions; Iris Elliott, Sharon Mallon and Anne Good

Anne Good has now retired from public service after decades engaged with disability research, including its ethical dimension nationally and internationally. Good is now an independent Sociologist, Researcher and Writer who maintains a keen interest in social justice and equality.Iris Elliott leads the Policy and Research Department in Ireland’s National Human Rights and Equality Institution. She is a Fellow of the Royal Society of Arts in recognition of her outstanding contribution and commitment to mental health.Sharon Mallon is Senior Mental Health Lecturer at the University of Staffordshire. She has a strong interest in the ethical impact of researching sensitive subjects.

• Introduction; Sharon Mallon, Anne Good and Iris Elliott Chapter 1. Systemic Change in Research Ethics for the UNCRPD Knowledge Base: Mapping a Way Forward; Anne Good and Gary Allen Chapter 2. Ethical and Legal Issues in the Collection, Use, and Dissemination of Data on Disability; Daniel Mont Chapter 3. The Importance of Definition of Terms in Disability Research; Jennifer Madans Chapter 4. Ethical Inclusion and Participation of People with Disability in Research: Problematising Vulnerability; Damian Mellifont, Annmaree Watharow, Sheelagh Daniels-Mayes, Jennifer Smith-Merry and Mary-Ann O’Donovan Chapter 5. On Surviving Race with Allies: Disability, Race / Ethnicity and Human Rights; Celia Brown, Clarencetine (Teena) Brooks, Jonathan P. Edwards, Chyrell D. Bellamy and Kathleen O’Hara. Chapter 6. The Role of an Ethics Committee in Co-produced Research: The Experience of the Disability Research on Independent Living and Learning (DRILL) Project; Alison Koslowski, Bronagh Byrne, Jackie Gulland and Peter Scott Chapter 7. Communicating Evidence for Impact; Iris Elliott Chapter 8. Conclusions; Iris Elliott, Sharon Mallon and Anne Good

Anne Good has now retired from public service after decades engaged with disability research, including its ethical dimension nationally and internationally. Good is now an independent Sociologist, Researcher and Writer who maintains a keen interest in social justice and equality.Iris Elliott leads the Policy and Research Department in Ireland’s National Human Rights and Equality Institution. She is a Fellow of the Royal Society of Arts in recognition of her outstanding contribution and commitment to mental health.Sharon Mallon is Senior Mental Health Lecturer at the University of Staffordshire. She has a strong interest in the ethical impact of researching sensitive subjects.

• Introduction; Sharon Mallon, Anne Good and Iris Elliott Chapter 1. Systemic Change in Research Ethics for the UNCRPD Knowledge Base: Mapping a Way Forward; Anne Good and Gary Allen Chapter 2. Ethical and Legal Issues in the Collection, Use, and Dissemination of Data on Disability; Daniel Mont Chapter 3. The Importance of Definition of Terms in Disability Research; Jennifer Madans Chapter 4. Ethical Inclusion and Participation of People with Disability in Research: Problematising Vulnerability; Damian Mellifont, Annmaree Watharow, Sheelagh Daniels-Mayes, Jennifer Smith-Merry and Mary-Ann O’Donovan Chapter 5. On Surviving Race with Allies: Disability, Race / Ethnicity and Human Rights; Celia Brown, Clarencetine (Teena) Brooks, Jonathan P. Edwards, Chyrell D. Bellamy and Kathleen O’Hara. Chapter 6. The Role of an Ethics Committee in Co-produced Research: The Experience of the Disability Research on Independent Living and Learning (DRILL) Project; Alison Koslowski, Bronagh Byrne, Jackie Gulland and Peter Scott Chapter 7. Communicating Evidence for Impact; Iris Elliott Chapter 8. Conclusions; Iris Elliott, Sharon Mallon and Anne Good