Assessing Genetic Risks

Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening.Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered:Quality control in genetic testing.Appropriate roles for public agencies, private health practitioners, and laboratories.Value-neutral education and counseling for persons considering testing.Use of test results in insurance, employment, and other settings.Table of ContentsFront MatterExective Summary1 Setting the Stage2 Genetic Testing and Assessment3 Laboratory Issues in Human Genetics4 Issues in Genetic Counseling5 Public Education in Genetics6 Personnel Issues in Human Genetics7 Financing of Genetic Testing and Screening Services8 Social, Legal, and Ethical Implications of Genetic Testing9 Research and Policy AgendaAppendix A: Workshop ParticipantsAppendix B: Committee BiographiesIndex