Research Handbook on Law, Governance and Bioethics

Edited by Deryck Beyleveld, Professor of Law and Bioethics, Durham Law School, Durham University, Roger Brownsword, Professor of Law, King’s College London and Bournemouth University, UK and Marcus Düwell, Institute for Philosophy, Technical University Darmstadt, Germany

• ContentsIntroduction to law, governance and bioethics: looking back, looking forward 1Deryck Beyleveld, Roger Brownsword and Marcus DüwellPART I METHODOLOGY AND BIG CHALLENGES1 Bioethics and biolaw confronting the ongoing process of neo-feudalism: afeminist critical perspective 33Gabriela Arguedas-Ramírez2 The future possibility of bioethics, biolaw and the rule of law 50Deryck Beyleveld and Roger Brownsword3 Bioethics and human nature: perspectives from philosophicalanthropology 71Marcus Düwell4 ‘Care for the common home’: Christian bioethics in the twenty-firstcentury 86Hille Haker5 Collective responsibility in a world in crisis 104Barbara PrainsackPART II BETTER GOVERNANCE6 Bioethical expertise and the case for lay participation 120Ruben Andreas Sakowsky and Silke Schicktanz7 The idea of governance in One Health 135Benjamin Capps8 From knowledge-based regulation to transitional law: developingappropriate legal responses to risks of global ecological collapse 159Olivia Woolley9 Risk in bioethics 177Sven Ove Hansson10 Musings on research ethics policy: progress, inclusion and goodgovernance 192Eric M. Meslin11 Dialogical bioethics: communicative practices in healthcare, research andpolicy 210Vilhjálmur Árnason12 Regulation as play: establishing a normative basis for the regulatorysandbox in human health research 226Graeme LauriePART IIIBIOETHICAL TOPICS13 Crossroads in the bioethics of reproduction 248Judit Sándor14 Governance challenges for heritable human genome editing: contestedconcepts and lines 266Rosamund Scott15 AI and governance: law, politics, and bioethics 287Deryck Beyleveld and Roger Brownsword16 Rights and duties in and regarding communicable disease epidemics andpandemics 318Klaus Steigleder, Marie Göbel and Philipp Richter17 Stakeholder engagement, disruptive technology and governance ofpopulation health screening programmes: a UK perspective 334Jeffrey WalePART IVGLOBAL DIMENSIONS18 Equitable access to essential health technologies during global healthemergencies: a sub-Saharan African perspective 351Pamela Andanda19 Biolaw and global catastrophic risks: building anticipatory governance foremerging technologies 367Erick Valdés and Juan Alberto Lecaros

‘Our world is in rapid change, and one crisis follows the other. In recent decades bioethics and inclusive governance promised to be an instrument to safeguard good ethics and the public good. But can we maintain this hope in view of trends to the opposite? This book acknowledges the current challenges and still provides some positive outlooks. Governance, law and bioethics will need to change, and salient signposts are marked in this book. A timely and important read indeed.’