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Reifying Women's Experiences with Invisible Illness: Illusions, Delusions, Reality provides a platform that recognizes that the experience of invisible illness is greatly influenced by context and personal circumstance. The contributors to this book include women who exude diversity as it relates to race and ethnicity, career, religious experience, education, social support, and interpersonal relationships. From recent college graduates to senior level professionals, these women share stories that create a space to advocate on behalf of the individual who is chronically ill rather than focusing on the often privileged perspective of medical professionals.
Kesha Morant Williams is associate professor of communication arts and sciences at Penn State University.Frances “Selena” Morant is psychiatric nurse with an assertive community treatment (ACT) program.
ContentsForeword: Communicating from/as/with the BodyLaura EllingsonIntroduction: Not an IllusionKesha Morant Williams Chapter 1: My Sister’s Keeper: Sibling Social Support and Chronic IllnessKesha Morant Williams Chapter 2: Temporal Reflections of UC Remission: An Autoethnography of Body Image & Acceptance Nicole Defenbaugh Chapter 3: A Semblance of Normalcy: Social Isolation and the Burden of Looking Well Hannah Thyberg Chapter 4: Transparency and Disclosure: Tools for Building Trust and Confidence Emily Pfender Chapter 5: An Unexpected Road to Discovery: Finding One’s Self in the Midst of UncertaintyLaunick Saint-Fort Chapter 6: When Lifestage Matters: A Narrative Account of a Pregnancy-Related Invisible Illness Eletra Gilchrist Petty Chapter 7: Reframing Personal and Professional Identity in Connection to “Ability”Cerise L. Glenn Chapter 8: Duty, Honor, Country…sickness: Finding Strength in my Personal Battle with Gulf War IllnessElizabeth Desnoyer-Colas Chapte
This book reflects a unique effort to capture the diverse factors that contribute to health at the systematic, cultural, and relational levels. Vital topics such as clinical experiences, family experiences, and social experiences come together to demonstrate how we can take agency in supporting improved health outcomes personally and across systems. The chapters represent a thoughtful and relatable approach to engagement and social justice for health.