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Narrating Patienthood

Engaging Diverse Voices on Health, Communication, and the Patient Experience

Häftad, Engelska, 2020

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Diversity plays an important role in how people experience illness and healthcare as patients. Listening carefully to stories of how race, class, age, gender, sexuality, and disability can affect patient experience can be revealing and provide much needed change to health communication in the patienthood narrative. This book is a collection of vibrant and engaging essays by scholars of narrative methods in health communication. Each chapter takes readers into the fascinating world of patients who use stories from their personal lives to challenge us to rethink, reimagine, and reformulate what health communication means in practice. Each section of the book focuses on an important aspect of the theory and practice of the patienthood narrative. Part one explores the important ways that telling and sharing patient’s stories can lead to learning, empowerment, and advocacy. Part two explores several key forms of diversity and how they affect patienthood. Part three illustrates how personal, relational, and cultural aspects of identity intersect to shape the patient experience.

Produktinformation

Utgivningsdatum2020-09-28
Mått153 x 220 x 22 mm
Vikt445 g
FormatHäftad
SpråkEngelska
SerieBloomsbury Studies in Health Communication
Antal sidor296
FörlagBloomsbury Publishing Plc
ISBN9781498585552

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Chapter 1: Narrating Patient Experience: Benefits for multiple audiences Chapter 2: From Stories to Discoveries: Patients’ Narratives as Advocacy in Biomedical ResearchChapter 3: Cultural Communication Competency as a Two-Way Street: My Journey from Medical Avoidance to Patient Self-AdvocacyChapter 4: Who will tell our stories? Emerging health legacies following the 2014-2016 Ebola EpidemicChapter 5: African Americans and Hospice Care: On Social Risk, Privacy Management, and Relational Health AdvocacyChapter 6: Can You Please Direct me to a Doctor That Has a Heart?: A Stage 4 Breast Cancer Patient NarrativeChapter 7: Exploring the Effects of Patient-Provider Communication on the Lives of Women with VulvodyniaChapter 8: Queer PatienthoodChapter 9: An Autoethnographic Account of Navigating Patienthood as a Person with Hearing ImpairmentChapter 10: From Consumer to Community-Based Researcher: Lessons from the HIV Stigma IndexChapter 11: The Gendered Nature of Generosity in Post-Hysterectomy “Dear Honey…” LettersChapter 12: The Narrative Journey and Decision-Making Process of Plastic Surgery PatienthoodChapter 13: Narrative Sense-Making in Systemic Lupus ErythematosusChapter 14: Healthy mother, healthy baby: An Autoethnography to Challenge the Dominant Cultural Narrative of the Birthing PatientChapter 15: Abelist Biases

This volume's 15 chapters provide diverse narratives about patients and their experiences mostly within the US health care delivery system. The field of "patienthood" as identified in the title is organized into three sections devoted to research, practice, and health care encounters. Part 1 contains four chapters that explain personal patient experiences as well as global patient advocacy. Part 2 examines how cultural differences, identities, and disabilities impact health behaviors, health disparities, and health communication. Part 3 details various health communication and patient caregiver encounters, including comparing one individual's varying health care experiences as a patient, a provider, and a family member. Kellett, professor of communication studies at UNC Greensboro, assembles the essays and furnishes a well-organized, contextualizing preface. Each chapter contains references, and there is a helpful index at the back. The book is a useful companion to Bo Snyder's The Patient Experience: Helping Physicians Improve Care (2015). This text is a worthwhile addition to collections in pediatric and family practice medicine, health communication, and public health.Summing Up: Recommended. Advanced undergraduates through faculty and professionals.