Out with Cancer

Jane M. Ussher is Professor of Women’s Health Psychology at the Translational Health Research Institute, Western Sydney University, Australia. A critical health psychologist with 35 years of experience, her research focuses on sexual and reproductive health and embodied subjectivity. She is the editor of the journal Women’s Reproductive Health and the Routledge Women and Psychology book series.Janette Perz is a Professor of Health Psychology and Director of the Translational Health Research Institute at Western Sydney University, Australia. She has over 30 years of experience researching reproductive and sexual health, with a focus on gendered experiences, subjectivity and identity.Rosalie Power is a Research Fellow in the Translational Health Research Institute, Western Sydney University, Australia. She is a NHMRC Emerging leader and a co-author of a series of publications on LGBTIQ+ cancer survivorship and care, as a member of the Out with Cancer Study team.Kimberley Allison is a Research Fellow at the Translational Health Research Institute, Western Sydney University, Australia. She is a co-author of a series of publications on LGBTIQ+ cancer survivorship and care, as part of the Out with Cancer Study team.

• ContributorsAcknowledgements1 Introduction: LGBTIQ+ People are an Invisible Diversity in Cancer CareJane M. Ussher, Rosalie Power, Kimberley Allison, Janette Perz2 “Surviving discrimination by pulling together”: LGBTIQ+ cancer patient and carer experiences of minority stress and social support.Rosalie Power, Jane M. Ussher, Janette Perz, Kimberley Allison, Alexandra Hawkey, and the Out with Cancer Study Team. 3 Re-imagining Queer Embodiment: Challenges to Sexuality and Intimacy after CancerJane M. Ussher, Sam Sperring, Amanda Denes, Rosalie Power, Janette Perz, Samantha Ryan, Chloe Parton, Gary W. Dowsett, Colin Ellis, Kimberley Allison4 “Oh my god, I’m going to wet myself”, Gay and bisexual men negotiate incontinence during cancerColin Ellis, Jane M. Ussher, Rosalie Power, Alexandra Hawkey5 Addressing the Fertility Concerns of LGBTIQ+ People with Cancer: A Reproductive Justice PerspectiveAlexandra Hawkey, Jane M. Ussher, Rosalie Power, Janette Perz 6 The Queer Temporality of Chronic IllnessSam Sperring, Jane M. Ussher, Rosalie Power, Alexandra Hawkey 7 Gender Euphoria or Disruption of Gender Affirmation: Cancer Impact on Transgender Embodiment and IdentityJane M. Ussher, Rosalie Power, Kimberley Allison, Janette Perz, Chloe Parton, Colin Ellis, Teddy Cook 8 A Human Right Violation: Medical Regulation of Intersex Bodies to Reduce Poorly Evidenced Risks of CancerJane M. Ussher, Morgan Carpenter, Rosalie Powe, Samantha Ryan, Bonnie Hart, Janette Perz, Alexandra Hawkey9 Developing Identities in the Context of Cancer: LGBTIQ+ Adolescents and Young Adults (AYAs)Kimberley Allison, Jane M. Ussher, Janette Perz, Rosalie Power, Samantha Ryan, Fiona McDonald, Kerry H. Robinson, Cristyn Davies 10 Pushed to the Sidelines: LGBTIQ+ Cancer CarersKimberley Allison, Jane M. Ussher, Janette Perz, Rosalie Power 11 Being Out with Cancer: LGBTIQ+ Disclosure and the Impact on Cancer Care and SatisfactionRosalie Power, Jane M. Ussher, Kimberley Allison, Alexandra Hawkey, Janette Perz 12 Egalitarian, Inclusive, or Hostile? Healthcare Professional Perspectives on LGBTIQ+ People with CancerJane M. Ussher, Rosalie Power, Janette Perz, Alexandra Hawkey, Kimberley Allison13 What Patients Want: Recommendations for Policy and Practice in LGBTIQ+ Cancer Care Rosalie Power, Jane M. Ussher, Alexandra Hawkey, Janette Perz, Samantha Ryan, Jenni Bruce Index

"Out with Cancer: LGBTIQ+ Cancer Survivorship and Care is an essential, eye-opening resource for students, researchers, and clinicians alike. With a thoughtful focus on the intersection of identity, health, and healing, this timely volume explores vital mind-body issues that shape the cancer experience for LGBTIQ+ individuals. A powerful contribution to inclusive care, it offers both evidence and empathy to help improve quality of life for a community too often overlooked in cancer care."- Gwendolyn P. Quinn, Ph.D., Livia S. Wan MD Endowed Professor, New York University Grossman School of Medicine, USA."This is a foundational publication on LGBTIQ+ cancer care considerations that arrives as LGBTIQ+ protections have regressed in the U.S. and censorship is peaking. As a colleague, I am incredibly grateful to the authors and contributors of this landmark study at a time when it is critically needed. -Mandi L. Pratt-Chapman, PhD, Professor of Medicine, The George Washington University School of Medicine and Health Sciences, Washington, DC, USA.“The Out with Cancer Study is one of the most comprehensive mixed methods studies to explore LGBTQI+ experiences of cancer and cancer care. This research provides unparalleled perspectives among people with cancer, caregivers, and the healthcare workforce.”- Matthew B. Schabath, PhD, Moffitt Distinguished Scholar, Program Leader, Cancer Epidemiology Program, Senior Member, Departments of Cancer Epidemiology and Thoracic Oncology, H. Lee Moffitt Cancer Center & Research Institute, Tampa, Florida USA."Out with Cancer" is a groundbreaking, compassionate, and urgently needed call to action, a blueprint we can use to transform our cancer care systems to account for the deeply complex and vulnerable experiences of LGBTIQ+ people with cancer and their carers.- Charles Kamen, PhD, MPH, he/him, Department of Surgery, University of Rochester, USA.