Long COVID and Society

Deborah Lupton is SHARP Professor in the Faculty of Arts, Design & Architecture, University of New South Wales (UNSW) Sydney, Australia. She is located in the Centre for Social Research in Health and the Social Policy Research Centre. She is a leading health sociologist and has been awarded two honorary doctorates for her outstanding achievements in research.

• Introduction.- The Social Aspects and Impacts of Long COVID.- Part I: Knowledge-Making.- Long COVID: The Critical Role of Patient Advocacy-Research in Disease Recognition.- Long COVID Times: An X/Twitter Informed Rhythmanalysis of Pacing.- Part II: Medical Responses.- ‘Just Because You Didn’t Detect It, Doesn’t Mean It’s Not There’: Long COVID, ME/CFS and the Social Dynamics of Biomedical Knowledge Production.- Long COVID Services between Medical Clinics and Healing Rituals: A Case Study in Switzerland.- Part III: Biopolitics and Social Determinants.- Long COVID and the Biopolitics of Pandemic Timings and Endings.- The Profound Societal Impacts of Long COVID and Pandemic Non-Interventionism.- Equity Amidst Uncertainty: A Comparative Critique of Multiple Stakeholder Perspectives about Health Equity for People with Long COVID.- Part IV: Lived Experience.- We Will Not Be Silent: The Australia Long COVID Community Speak out About the Role of Epistemic Injustice in Erasing Evidence of Long COVID in Australia.- Living with the Virus: An Autoethnography of Long COVID as Multilayered Traumatisation.- The Double Bind: Gaslighting, Cultural Violence and the Post-Acute COVID Experience.- Part V: Specific Social Groups.- ‘I Have Disappeared’: Long COVID, ME/CFS and Inclusion in Church Communities.- The Debilitating Discourses of Long COVID: The Public Pedagogies of Sporting Bodies.- Long COVID in Children, Young People and Families.- Coda.- My Strange Revelations from Grief and Long COVID: How Caring for My Wife Showed Me the Horror and Beauty of Loss from Disease.