Children and Youth with Complex Cerebral Palsy

Care and Management

Häftad, Engelska, 2018

Av Laurie Glader, Richard Stevenson, Laurie (Harvard University Medical School) Glader, Richard (University of Virginia School of Medicine) Stevenson

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Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others.Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management.Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.

Produktinformation

Utgivningsdatum2018-12-28
Mått170 x 239 x 18 mm
Vikt771 g
FormatHäftad
SpråkEngelska
SerieMac Keith Press Practical Guides
Antal sidor404
FörlagMac Keith Press
ISBN9781909962989

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Laurie Glader is an Assistant Professor at Harvard University Medical School. She trained in Developmental and Behavioral Pediatrics, ultimately focusing on children with medical complexity. Since 1997 she has directed the Complex Care Service Outpatient Program at Boston Children’s Hospital (BCH), and provides patients with comprehensive medical care and developmental oversight. Her particular area of interest is children with cerebral palsy and models of care delivery. She is co-director of the large multi-disciplinary Cerebral Palsy and Spasticity Center at BCH. She is active in the American Academy of Cerebral Palsy and Developmental Medicine.Richard Stevenson is Professor of Pediatrics at the University of Virginia School of Medicine in the Division of Developmental Pediatrics, where he has been on the faculty since 1989. He is an attending pediatrician at the Child Development and Rehabilitation Center (CDRC) of the University of Virginia Children's Hospital, caring for children across the range of acquired and congenital disabilities. He is active in clinical care, education, research and administration. He is Past President of the American Academy for Cerebral Palsy and Developmental Medicine. His main interest and expertise relates to the care of children with cerebral palsy, and he has particular empathy for children with complex needs.

Author AppointmentsAcknowledgementsPrefaceOpening Quote1. Overview and IntroductionRichard Stevenson and Laurie Glader2. Functional Assessment and Goals of ManagementJilda N Vargus-Adams and Andrea L Paulson3. HypertoniaDarcy Fehlings, Anne Kawamura, Cecilia Lee and Amber Makino4. Musculoskeletal/Orthopedic ManagementMark J Romness and Victor Anciano5. Seating, Mobility, and Equipment NeedsChristopher D Lunsford and Jonathan Greenwood6. Osteoporosis and FracturesSteven J Bachrach and Heidi H Kecskemethy7. Feeding and NutritionValentina Intagliata, Eva Delaney and Mary C Bickley8. Gastrointestinal IssuesBeate Beinvogl and Munir Mobassaleh9. Overview of Pulmonary and Sleep Disorders in Children with Complex Cerebral PalsyUmakanth Katwa and Sebastian K Welsh10. Speech and CommunicationJohn M Costello and Elizabeth N Rose11. Cognitive and Sensory ImpairmentKatheryn F Frazier12.Challenging Behaviors, Sleep and ToiletingAlisa Bahl and Kurt A Freeman 13. Mental health in Children and Adolescents with Cerebral PalsyKerim M Munir and Ikram Rustamov14. Pain and IrritabilityJulie Hauer15. Seizures and Epilepsy in Children with Cerebral PalsyJohn R Mytinger and Howard P Goodkin16. Urologic IssuesStuart Bauer17. Adolescence and SexualitySusan Hayden Gray18. Transition to AdulthoodKitty O'Hare and Claudio Melo de Gusmao19. Evidence Based Care: A Tool Chest for Helping Families Navigate Treatment OptionsLisa Samson-Fang20. Difficult Topics and Decision MakingJim Plews-Ogan and Richard I Grossberg21. Through the Eyes of ParentsMichele Shusterman, Carol Shrader and Jennifer Lyman22. Growing up, Growing Well with Cerebral PalsyAndrew J Smith, Chelsea Strawser, Benjamin Schrader, Jaylan Norfleet and Garey NoritzAppendix: Care Tools for Clinical Practice