Del 40 i serien Oxford Monographs on Medical Genetics

Genetics and Public Health in the 21st Century

Using Genetic Information to Improve Health and Prevent Disease

Inbunden, Engelska, 2000

AvMuin J. Khoury,Wylie Burke,Muin J. Khoury,Wylie Burke,Elizabeth Thomson

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With the accelerating discovery of human genes, public health professionals are increasingly confronted with a large body of scientific information that will guide public health action. Because the broad mission of public health is to fulfill society's interest in assuring conditions in which people can be healthy, the integration of new genetic information in public health research, policy and program development is unavoidable. Public health leadership is urgently needed to use genetic information to improve health and prevent disease, and to address ethical, legal and social issues resulting from inappropriate use of such information. In the not too-distant future, disease prevention and health promotion programs will routinely consider whether or not to use genetic information to help target behavioral, medical or environmental intervention activities in order to maximize benefit and minimize costs and harm to individuals. In anticipation of the expected growth at the interface of genetics and public health, this book delineates a framework for the integration of advances in human genetics into public health practice. It provides a comprehensive review of public health genetics, including chapters on important general issues such as newborn and other genetic screening, the delivery of genetic services, and the ethical, legal and social implications of the use of genetics within public health. It also reviews relevant clinical topics, the historical background, cross-cultural aspects, and communication issues. Contributors come from a wide range of fields including epidemiology, biostatistics, health policy and management, health services research, behavioral and social sciences, ethics, law, health economics, and laboratory sciences.

Produktinformation

Utgivningsdatum2000-09-21
Mått239 x 165 x 34 mm
Vikt1 061 g
FormatInbunden
SpråkEngelska
SerieOxford Monographs on Medical Genetics
Antal sidor664
FörlagOUP USA
ISBN9780195128307

Tillhör följande kategorier

Epidemiologi och medicinsk statistik inom Medicin
Folkhälsa och hälsopedagogik inom Medicin
Hälso- och sjukvård inom Medicin
Reproduktionsmedicin inom Medicin

Contributors ; Part 1: Genetics and Public Health: An Overview ; 1. Genetics and Public Health: A Framework for the Integration of Human Genetics into Public Health Practice ; 2. Genetics and Public Health: Historical Perspectives and Current Challenges and Opportunities ; 3. The Human Genome Project: Evolving Status and Emerging Opportunities for Disease Prevention ; 4. Models of Public Health Genetic Policy Development ; 5. The Multidisciplinary Nature of Public Health Genetics in Research and Education ; Part 2: Public Health Assessment ; 6. Epidemiology, Molecular Biology, and Public Health ; 7. Surveillance for Birth Defects and Genetic Diseases ; 8. Surveillance for Hemophilia and Inherited Hematologic Diseases ; 9. Public Health Assessment of Genetic Predisposition to Cancer ; 10. Public Health Assessment of Genetic Susceptibility to Infectious Diseases: Malaria, Tuberculosis, and HIV ; 11. Public Health Assessment of Genetic Information in the Occupational Setting ; Part 3: Evaluation of Genetic Testing ; 12. Medical and Public Health Strategies for Ensuring the Quality of Genetic Testing ; 13. Newborn Screening Quality Assurance ; Part 4: Developing, Implementing, and Evaluating Population Interventions ; 14. Public Health Needs Assessment for State-Based Genetic Services Delivery ; 15. Access to Genetic Services in the United States: A Challenge to Genetics in Public Health ; 16. Community Genetics in The Netherlands ; 17. Delivery of Genetic Services in Developing Countries ; 18. Genetics and Prevention Effectiveness ; 19. Impact of Genetic Information and Genetic Counseling on Public Health ; 20. Lessons Learned from Newborn Screening for Phenylketonuria ; 21. Newborn Screening for Cystic Fibrosis: A Paradigm for Public Health ; 22. Newborn Screeing for Sickle Cell Disease: Public Health Impact and Evaluation ; 23. Public Health Strategies to Prevent the Complications of Hemochromatosis ; 24. Applying Genetic Strategies to Prevent Atherosclerosis ; Part 5: Genetics and Public Health: Ethical, Legal and Social Issues ; 25. Genetics, Public Health, and the Law ; 26. Genetics and Public Health: Informed Consent Beyond the Clinical Encounter ; 27. Public Health Surveillance of Genetic Information: Ethical and Legal Responses to Social Risk ; Part 6: Communication, Education, and Information Dissemination ; 28. Principles and Practices of Communication Processes for Genetics in Public Health ; 29. Training in Public Health Genetics ; 30. Consumer Perspectives on Genetic Testing: Lessons Learned ; 31. Using the Internet to Disseminate Genetics Information for Public Health ; Index