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Can You Help Me?: Inside the Turbulent World of Huntington Disease shares the surprising, insightful, challenging, and even encouraging stories of patients and their families who live with Huntington Disease. Having seen patients for more than 40 years, Dr Thomas Bird, a pioneer neurogeneticist, adds a human touch to this genetic brain disease that devastates persons during mid-life when they can least afford it. With a brief history of Huntington Disease and the occasional scientific detail, the true heart of the book is the human experience of the disorder:· The man who cannot stay out of prison because he is addicted to being a burglar. · Another man shoots and kills his roommate while watching television and cannot explain why he did it. · The woman with Huntington Disease copes with her depression by using Texas line dancing. · A twelve year old girl with juvenile Huntington Disease who can barely walk and talk, but her classmates rally around with touching and heartfelt support. · And the 72 year old man with late onset Huntington Disease and severe depression is made worse by ECT, but improved (for a while) with Transcranial Magnetic Stimulation. These are just some of the compelling stories of people of all ages and in all walks of life who feel trapped by a progressive degenerative brain disease from which there is no escape.
Dr. Thomas Bird is a Professor of Neurology and Medical Genetics at the University of Washington who has been a pioneer in the field of Clinical Neurogenetics. He has received numerous national awards for his research on hereditary diseases of the nervous system including Alzheimer and Huntington diseases and established the first clinic for adults with neurogenetic diseases in the United States.
DedicationPreface1. Introduction2. Comparing Huntington Disease to Other Brain Diseases3. Genetic Counseling and the Genetic Testing ConundrumPart I - Interacting with the Legal and Mental Health Care System4. Can You Help Me?5. It Was Awful6. The Asylum7. Meeting Huntington Disease Patients at Western State8. I Don't Know Why I Did It9. Carkeek Park10. Please Call the CoronerPart II - Coping Strategies11. Enjoy the Moment12. High Five13. Let's Try a Magnet14. "I Don't Agree"15. The Greatest Generation and Productive Lifestyles16. Princess in PinkPart III - Marriage, Family, and Finances17. For Better, For Worse18. In Sickness and in Health19. Money Problems20. Staying Employed21. We Just Want to Have a Child22. The Judge Said "Are You Sure You Want to Do This?"23. The Thanksgiving Visitor24. Family Opposites25. A Second WeddingPart IV - Embarrassment, Injury, Neglect, and Delusions26. Excuse Me Madam and I Am Not Drunk27. Broken Bones28. A Bump on the Head29. Impulse Control30. Reservation Blues31. Is This Negligence?32. Delusions, Hallucinations, and Diabolical Possession33. The Downward Spiral34. A Visit to Willow ParkV -Summing Up35. Summing Up: "Can you help me?"AcknowledgmentsAppendix: The Genetic Test for HD
Dr. Bird succeeds in capturing the pain, frustration, and stigma associated with Huntington's disease ... His writing is straightforward, easy to read, and engaging.
