Real-World Research to Improve Dementia Care

Jill Harrison, PhD, is an Executive Director at the NIA IMPACT Collaboratory and an Associate Professor of Practice in the Department of Health Services, Policy and Practice at Brown University School of Public Health. Prior to joining the IMPACT Collaboratory, Dr. Harrison served as the Director of Research for an international non-profit advocacy organization, founded by a patient and focused on implementing person-centered care initiatives in healthcare organizations in 27 countries. She served on the advisory panel for patient engagement at the Patient-Centered Outcomes Research Institute (PCORI) and was the principal investigator of a PCORI Engagement Award about how patient-family advisory councils engage in research. Her research interests include: pragmatic trials in real-world settings, engaging residents of long-term care communities as evaluators of care quality, developing culturally congruent person-centered care approaches in healthcare systems, and organizational cultural change. She completed her post-doctorate at Brown University in health services research.Vincent Mor, PhD, is a Professor of Health Services, Policy & Practice and Florence Pirce Grant Professor in the Brown University School of Public Health and has been principal investigator of 40+ NIH-funded grants focusing on use of health services and outcomes of frail and chronically ill people. He has evaluated the impact of programs and policies including Medicare funding of hospice, changes in Medicare nursing home payment, and the introduction of nursing home quality measures. He co-authored the Congressionally-mandated Minimum Data Set (MDS) and was architect of an integrated Medicare claims and clinical assessment data structure used for policy analysis, pharmacoepidemiology and population outcome measurement. These data resources are the heart of Dr. Mor’s NIA- funded Program Project Grant, “Changing Long Term Care in America,” which examines the impact of Medicaid and Medicare policies on long-term care.

• 1. Introduction to Embedded Pragmatic Trials to Improve Dementia Care2. Engaging Partners to Improve Dementia Care3. Building Research and Community Partnerships in Home Care and Hospice to Conduct Pragmatic Trials4. Research Methods in Embedded Pragmatic Trials5. Addressing Disparities and Inequities in Research to Improve Dementia Care6. Selecting Measures that Matter to People Living with Dementia and Care Partners7. Anticipating and Addressing Ethical and Regulatory Challenges in Embedded Pragmatic Trials Involving People Living with Dementia8. Implementing Interventions to Improve Dementia Care: Understanding Mechanisms of Action in Embedded Pragmatic Clinical Trials in Home and Community Settings9. Emerging Technologies: The Future of Dementia Research10. Introduction to Case Studies10a. Case Study 1: Music and Memory: A Pragmatic Trial for Nursing Home Residents With Alzheimer's Disease10b. Case Study 2: Improving How People Living with Dementia are Selected for Care Coordination: Pragmatic Clinical Trial Embedded in an Accountable Care Organization10c. Case Study 3: Overcoming Challenges to Recruiting Caregivers in Dementia Care Research10d. Case Study 4: Implementation of Dementia-Friendly and Age-Friendly Health System Programs across Settings of Care10e. Case Study 5: INTERACT: Large Scale Research Partnerships with Long-Term Care Communities10f. Case Study 6: Strategies Associated with COVID-19 Vaccine Coverage among Nursing Home Staff10g. Case Study 7: A Cluster-randomized Trial of Adjuvanted Versus Nonadjuvanted Trivalent Influenza Vaccine in 823 US Nursing Homes10h. Case Study 8: Detection of Dementia in the Emergency Department10i. Case Study 9: ALIGN: Case Study in De-prescribing for Dementia10j. Case Study 10: The PROTECT Trial: Partnering with Nursing Homes to Reduce Infections11. Resources to Design, Fund, and Conduct a Pragmatic Trial to Improve Dementia Care12. Conclusion