One of the barriers to improving the quality of cancer care in the United States is the inadequacy of data systems. Out-of-date or incomplete information about the performance of doctors, hospitals, health plans, and public agencies makes it hard to gauge the quality of care. Augmenting today's data systems could start to fill the gap. This report examines the strengths and weaknesses of current systems and makes recommendations for enhancing data systems to improve the quality of cancer care. The board's recommendations fall into three key areas: * Enhance key elements of the data system infrastructure (i.e., quality-of-care measures, cancer registries and databases, data collection technologies, and analytic capacity). * Expand support for analyses of quality of cancer care using existing data systems. * Monitor the effectiveness of data systems to promote quality improvement within health systems.
Maria Hewitt and Joseph V. Simone, Editors, National Cancer Policy Board, National Research Council
Front MatterExecutive SummaryIntroductionWhat Would an Ideal Cancer Data System Look Like?How are Healthcare Systems Monitoring Quality Today?The Data Infrastructure for Health Services ResearchStatus of the Cancer Care Data SystemFindings and RecommendationsReferencesAcronyms and AbbreviationsAppendix A: Ensuring Quality Cancer Care, Report SummaryAppendix B: Workshop Agenda and ParticipantsAppendix C: Summary of Selected Registry-Based Quality StudiesAppendix D: Information on Cancer Registries, by StateAppendix E: Reporting Requirements, NPCR, NCDB, SEERIndex
National Research Council, Division of Behavioral and Social Sciences and Education, Institute of Medicine, and Families Board on Children, Youth, Steve Olson
National Research Council, Division on Earth and Life Studies, Commission on Life Sciences, Board on Toxicology and Environmental Health Hazards, Safe Drinking Water Committee
National Research Council, Division of Behavioral and Social Sciences and Education, Commission on Behavioral and Social Sciences and Education, and Statistical Sciences Committee on AIDS Research and the Behavioral, Social, Lincoln E. Moses, Heather G. Miller, Charles F. Turner
National Research Council, Division on Engineering and Physical Sciences, and Applications Commission on Physical Sciences, Mathematics, Committee to Provide Interim Oversight of the DOE Nuclear Weapons Complex
National Research Council, Institute of Medicine, National Cancer Policy Board, Committee on Shortening the Time Line for New Cancer Treatments, Hellen Gelband, Joseph V. Simone, Susan L. Weiner, Peter C. Adamson
Institute of Medicine and National Research Council, Commission on Life Sciences, Institute of Medicine, National Cancer Policy Board, Joseph V. Simone, Maria Hewitt
National Research Council, Institute of Medicine, National Cancer Policy Board, Committee on Assessing Improvements in Cancer Care in Georgia, Joseph V. Simone, Jill Eden
National Research Council, Institute of Medicine, National Cancer Policy Board, Committee on Cancer Survivorship: Improving Care and Quality of Life, Ellen Stovall, Sheldon Greenfield, Maria Hewitt
National Research Council, Commission on Life Sciences, Institute of Medicine, National Cancer Policy Board, Committee on the Early Detection of Breast Cancer, Joyce C. Lashof, I. Craig Henderson, Sharyl J. Nass, Margie Patlak
National Research Council, Commission on Life Sciences, Institute of Medicine, National Cancer Policy Board, Committee on the Early Detection of Breast Cancer, Laura Newman