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Justice is foundational to discussion, debate, and policy making surrounding biomedical research. Time-tested for more than 20 years, Beyond Consent examines the concept of justice and its application to research with human subjects, through multiple lenses of research populations of people who are sick (including those needing emergency medical care), cognitively impaired, children, captive and convenient (such as prisoners), women, racial minorities, communities, and living in international settings. This second edition includes new chapters on today's leading-edge topics as well as updated chapters that consider what has changed, and what new matters have arisen. The result is a fresh treatment of the latest issues and concepts of justice in research examined by multidisciplinary scholars.This volume is a vital resource for students and scholars of bioethics, medicine, and public health policy; as well as for members of institutional review boards, research administrators, and policy makers.
Anna C. Mastroianni is Professor of Law, School of Law and Institute for Public Health Genetics, University of Washington; Jeffrey P. Kahn is Andreas C. Dracopoulos Director of Johns Hopkins Berman Institute of BioethicsJeremy Sugarman is Harvey M. Meyerhoff Professor of Bioethics and Medicine, Johns Hopkins University Berman Institute of Bioethics and School of Medicine
Title PageDedicationPrefaceTable of ContentsList of Contributors1. Examining Justice in Research: An Introduction and OverviewJeffrey P. Kahn, Anna C. Mastroianni, and Jeremy P. Sugarman2. The Evolving Story of Justice in ResearchEric M. Meslin and Charles R. McCarthy3. Justice and Research with the Vulnerable SickBaruch A. Brody and Neal W. Dickert4. Justice and Research in Populations with Cognitive ImpairmentScott Kim5. Justice and Pediatric ResearchLainie Friedman Ross and Robert M. Nelson6. Justice and Women's Participation in ResearchNancy Kass and Anne Drapkin Lyerly7. Justice, Race, and Racism in ResearchPatricia A. King8. Justice, Research and CommunitiesKatherine F. King and James V. Lavery9. Justice in Research with Convenient and Captive PopulationsJonathan D. Moreno10. Justice in Global ResearchRuth Macklin11. Theorizing Justice in Health ResearchYashar Saghai12. Pursuing Justice in ResearchJeffrey P. Kahn, Anna C. Mastroianni, and Jeremy P. Sugarman
...this book makes a very important point: it is necessary to understand the role and function of justice not only in health care, public health, and health policy but also in research. Through detailed analyses, its chapters probe the myriad levels of justice in research that deserve further reflection going forward.
Institute of Medicine, Division of Health Sciences Policy, Committee on the Ethical and Legal Issues Relating to the Inclusion of Women in Clinical Studies, Daniel Federman, Ruth Faden, Anna C. Mastroianni
Institute of Medicine, Committee on Ethical and Legal Issues Relating to the Inclusion of Women in Clinical Studies, Daniel Federman, Ruth Faden, Anna C. Mastroianni
National Research Council, Division on Earth and Life Studies, Board on Life Sciences, Institute of Medicine, Board on Health Sciences Policy, Committee on the Use of Chimpanzees in Biomedical and Behavioral Research, Jeffrey P. Kahn, Marilee K. Shelton-Davenport, Diana E. Pankevich, Bruce M. Altevogt