Beyond the HIPAA Privacy Rule

• 1 Front Matter; 2 Summary; 3 Overview of Conclusions and Recommendations; 4 1 Introduction; 5 2 The Value and Importance of Health Information Privacy; 6 3 The Value, Importance, and Oversight of Health Research; 7 4 HIPAA, the Privacy Rule, and Its Application to Health Research; 8 5 Effect of the HIPAA Privacy Rule on Health Research; 9 6 A New Framework for Protecting Privacy in Health Research; 10 Appendix A: Previous Recommendations to the Department of Health and Human Services; 11 Appendix B: Commissioned Survey Methodology; 12 Appendix C: Committee Member and Staff Biographies; 13 Abbrevations and Acronyms; 14 Glossary

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